![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 19 of 19. This is the beginning of the thread.
Posted by Phillipa on January 19, 2009, at 12:28:04
I know hashimotos thyroiditis is known for fluctuating but this is ridiculous as I faithfully never miss a dose or vary taking on empty stomach but just got recent results back again and TSH is still over 11 and a few months ago was under l? I've searched the internet. Hesitate to go to thyroid forums as they use alternative thyroid meds and both the two endo practices I've seen find synthroid superior can't fault the docs as even this one is getting concerned changed dose again and is now repeating bloodwork in four weeks instead of the normal eight. Is there an interaction between synthroid and valium as take them together endo said okay? The tiredness is overwhelming. Thanks Phillipa. Hence the bike riding at night to get some thyroid pumping and allow me to do my nightly work. Oh synthroid was grandfathered in never officially approved?
Posted by SLS on January 19, 2009, at 12:46:00
In reply to Why Won't Thyroid Tsh Come Down From Over 11??, posted by Phillipa on January 19, 2009, at 12:28:04
Why don't you just have the damned thing removed and take thyroxine as a replacement.
Actually, I don't know that it would be that simple. I wish it were for your sake.
- Scott
Posted by Phillipa on January 19, 2009, at 13:01:05
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11??, posted by SLS on January 19, 2009, at 12:46:00
Scott you know I've wondered the same exact thing. Know two people that did one is fine the other nothing changed she travels in NYC for her endo. I am so faithful to taking this med right. And it's scarey as getting older. I know my neice has nodules and the scan hers and said almost burned out. But it's stable. My mind has so many things it wants to do and places to go and body says no. But can't give in to the body. Got to fight. Thanks for answering. I just wish I knew where to search tried so many searches over last year. Love Phillipa cold there too got snow even we're due for it tonight and tomorrow.
Posted by SLS on January 19, 2009, at 14:01:48
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11?? » SLS, posted by Phillipa on January 19, 2009, at 13:01:05
Have you ever taken T4 and T3 together?
- Scott
Posted by fleeting flutterby on January 19, 2009, at 17:07:26
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11??, posted by SLS on January 19, 2009, at 14:01:48
Maybe Scott has a point about getting it taken out...... I have a sister that had hers out and my mother did too and they are doing just fine. (my sister had severe Graves Disease and my mom had a huge goiter)
My Hashimoto's is controlled with thyroid meds... I have nodules and last tests showed my thyroid is pretty much non-functional now.
anyway-- I sure hope things get better for you phillipa.
flutterby-mandy
Posted by Zyprexa on January 19, 2009, at 19:44:25
In reply to Why Won't Thyroid Tsh Come Down From Over 11??, posted by Phillipa on January 19, 2009, at 12:28:04
Phillipa,
I had a simmilar problem. Was doing great on one dose of thyroid medicine, TSH was 1.8. Then 6 months later doing everything the same, TSH was 5. Whats up. I'm on a new med now go in tomorow for test. See what happens this time. You take synthroid don't you. Generic or brand? Do you know if generic is as good. I'm taking brand right now, but want to go generic as its 1/7 the price.
Posted by SLS on January 19, 2009, at 20:09:26
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11?? » Phillipa, posted by Zyprexa on January 19, 2009, at 19:44:25
Synthroid had quality control problems with inconsistent amounts of T4 per pill. I don't know if it still does. Levoxyl is supposed to be the best of them.
- Scott
Posted by Phillipa on January 19, 2009, at 20:33:32
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11??, posted by SLS on January 19, 2009, at 14:01:48
Scott cytomel? Took 5mg or mcg and it wired me. Love Phillipa ps endo said it only works for a short period of hours.
Posted by Phillipa on January 19, 2009, at 20:37:50
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11??, posted by fleeting flutterby on January 19, 2009, at 17:07:26
Hi Mandy like my neice she also has the nodules and nonfunctional she's mid thirties. And thyroid stable with her synthroid also. It seems if you google endos they seem more intersted in diabetes than thyroid issues. I've told my husband it will come to that doesn't listen. But have that feeling you know when you just know? Thanks for caring. Love Phillipa
Posted by Phillipa on January 19, 2009, at 20:45:22
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11??, posted by SLS on January 19, 2009, at 20:09:26
Oh really that is interesting. Asked endo and pharmacist which is prescribed the most both said the real synthroid. Zyprexa five isn't that high I'd think and adjustment of dose would work for you. If you switch you will need a different doseage. Someone suggest a search. Like what words to combine? Done so many. Hashimotos is the most common form of thyroid disorder autoimmune. Uggg all this time and waiting. Anyone want to perform surgery???? Love Phillipa
Posted by Maria3667 on January 20, 2009, at 4:00:11
In reply to Why Won't Thyroid Tsh Come Down From Over 11??, posted by Phillipa on January 19, 2009, at 12:28:04
Hi Phillipa,
Long time no read!
Could it be an auto-immune reaction? I've heard people on the Sjogren's forum mention this...
It don't think it could be the Valium. I've taken T3 & T4 together in addition to Valium, I never noticed any difference.
Best wishes,
Maria> I know hashimotos thyroiditis is known for fluctuating but this is ridiculous as I faithfully never miss a dose or vary taking on empty stomach but just got recent results back again and TSH is still over 11 and a few months ago was under l? I've searched the internet. Hesitate to go to thyroid forums as they use alternative thyroid meds and both the two endo practices I've seen find synthroid superior can't fault the docs as even this one is getting concerned changed dose again and is now repeating bloodwork in four weeks instead of the normal eight. Is there an interaction between synthroid and valium as take them together endo said okay? The tiredness is overwhelming. Thanks Phillipa. Hence the bike riding at night to get some thyroid pumping and allow me to do my nightly work. Oh synthroid was grandfathered in never officially approved?
Posted by Phillipa on January 20, 2009, at 11:56:10
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11?? » Phillipa, posted by Maria3667 on January 20, 2009, at 4:00:11
Maria been meaning to write as have a question for you. Will get on that now. Thanks for answering. Love Phillipa
Posted by Phillipa on January 20, 2009, at 12:42:06
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11??, posted by SLS on January 19, 2009, at 12:46:00
Scott guess this is why no nodules, not graves, not cancer. Phillipa
Posted by tealady on February 3, 2009, at 18:26:50
In reply to Re: Why Won't Thyroid Tsh Come Down From Over 11?? » SLS, posted by Phillipa on January 19, 2009, at 13:01:05
> Scott you know I've wondered the same exact thing. Know two people that did one is fine the other nothing changed she travels in NYC for her endo. I am so faithful to taking this med right. And it's scarey as getting older. I know my neice has nodules and the scan hers and said almost burned out. But it's stable.
Mine's been stable since it burnt itself out last year. Like almost everyone with hashi, your levels/output varies in bursts. Its entirely different to just having it removed with goitre. There the thryoid can regrow and you don't even need meds.. most my ancestors did it this way I found out later!!(some may have been partial thryoidectomies, but all were told they were total and all have normal functioning thryoids over 40 or 50 years later, with perfect TSH and no meds.. beat that??
But with hashi, the question is, does it remove the antibodies , removing the thyroid gland? I didnt know so didnt persue tyring to get someone to remove my thyroid gland.
On replacement meds you never are as good as your own thryoid gland, so I just kept hoping the antibodies would go away and i'd recover.. its possible, but highly unlikely!
The thing is, ldn may offer some hope of supressing those antibodies with your own immune system and perhaps one day a recovery??? So far I don't think it has.. but its a thought. Its the kind of thing I've been looking for, but probably too late for me as my little remaining thryoid tissue is not normal in ultrasound.
I get the hashi antibodies form my other side of my family.. there the females all have hashi(and some lupus), and grandmother died , probably from same in mid 20's. It was said she was very tired...
That's why I'm so interested in ldn, but not too hopeful of course.
BTW me and others don't take the same amount of meds daily.. we have to try to figure out if we feel we need more or not.. difficult as you get tired from too much as well, but its a more wired tired. Of course I'd never mention this to my doctors!.. but if you think about it it makes sense as your thryoid is not ouputting the same amount..
Best wishes,
Jan
Posted by tealady on February 3, 2009, at 18:35:11
In reply to Why Won't Thyroid Tsh Come Down From Over 11??, posted by Phillipa on January 19, 2009, at 12:28:04
To clarify,
there are many kinds of antibodies ..some are to the thryoid gland, some to thryoid hormone recptors, some to TSH receptors , some to thryoid hormones, some to ..well proabably many undiscovered as well.
I have TPO and TG found , but my TSH ones seem fine. This,I gather, is typical of hashimoto.
I never could find out if removing the thyroid gland would make the antibodies die off or not. It seems maybe it does as I feel like I have less since my thyroid went stupid after the traffic accident and burnt itself out. It wasnt just my thyroid though, my whole body inflammation and autoimmune just flared up withthe stress I suspect. i had a lot of stuff just go stupid:-)So the idea is to stop those antibodies.. and then the thyroid may or may not recover.. that;s the theory..
Jan
Posted by tealady on February 3, 2009, at 18:48:09
In reply to Why Won't Thyroid Tsh Come Down From Over 11??, posted by Phillipa on January 19, 2009, at 12:28:04
Of course, assuming your antibody levels are stable(unlikely), then you need more thryoid hormone in cold weather (if outside in it) and also need more if you exercise, you need more if you weigh more..you even use thryoid hormones up in digestion and metabolism, so more if you eat more! So unless you have the same activity levels, same antibody level, same weather/temperature exposure (like in airconditioning all day), and eat and exercise much the same.. you should need a varying amount of thyroid hormones every day. Your own thryoid does this on demand.. as your own thryoids production gets lowered you should notice the difference more.
So most people on T4 end up taking more than is required to keep a store..your body stores thyroid hormones everywhere..in every cell membrane for starters! Its too important not to have a reserve.. and that's why you hear of people not feeling the best (never completely normal), unless they have a low TSH ...probably
Docs just try to get you within normal range, or the more informed try to get you down arfound 1.0. This works for some, and me too as I can;t tolerate too high a level in my body(perhaps too much stress on adrenals?, I don't now for sure why), but the anxiety gets too high I think. As I can;t get tested on demand I cant really say for sure what is goling on here..
so everything is a compromise..which is why its better to have at least something from your own thryoid usually.. of course the antibodies wreck havoc and that has to be balanced in..
Jan
Posted by Phillipa on February 3, 2009, at 21:38:46
In reply to Cold weather need more?, posted by tealady on February 3, 2009, at 18:48:09
Tealady other than a name we share a lot of similiarities body wise. I'd seriously like to talk to you more. Babblemail is on. Looking forward to hearing from you.Didn't check to see if your's was on. But I see the endo for more bloodwork this time after four weeks as changed dose from 5mcg two three days a week and 100mcg two days a week to steady 75mcg daily. Love Jan/phillipa
Posted by rskontos on February 5, 2009, at 18:45:01
In reply to Re: Cold weather need more? » tealady, posted by Phillipa on February 3, 2009, at 21:38:46
I also read that sometimes docs try giving small dosages of antibotics with the theory being that maybe the body seeing that there are others antibotics present would reduce its production of antibodies and thereby stopping the assault on the thyroid. My doc hasn't suggested this but I am thinking of asking her about it. I read this on Mary Shomon's site and her book as well. I can't remember the other well known doc that talked about this. This other doc who is a leading doc, my stupid-max (otherwise known as topamax is kicking) maintained the thyroid would not get into gear until patients were put on a dosage of 160 mgs of thyroid meds no matter what they were. Seems extreme to me. And of course I can't remember at the moment his rationale for this because my brain went on hiatus.
I am on Armour and mine levels have been up and down. Never near normal but I am recently dx'd with this whole thyroid issues and Hashimoto's. However, my father's whole family has it as well as my father had a Thyroid Storm, burned up his thyroid and is now meds forever. He had an overactive and my doc suspects I did too but I stressed my thyroid out. I also have adrenal fatigue.
rsk
Posted by Phillipa on February 5, 2009, at 21:14:29
In reply to Re: Cold weather need more?, posted by rskontos on February 5, 2009, at 18:45:01
Oh I've gone to Mary Shoman's site. Where did you find this about antibiotics. This is very interesting to me. Thanks Phillipa
This is the end of the thread.
Psycho-Babble Medication | Extras | FAQ
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.org
Script revised: February 4, 2008
URL: http://www.dr-bob.org/cgi-bin/pb/mget.pl
Copyright 2006-17 Robert Hsiung.
Owned and operated by Dr. Bob LLC and not the University of Chicago.