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Posted by merry on November 13, 2004, at 20:40:01
In reply to Re: adverse effects » headachequeen, posted by rainy on November 13, 2004, at 10:53:11
I know what those highs and lows feel like. What kat is talking about I understand, too. But it isn't the same thing. I am a very creative person, too. I always have something going on. I have a small farm to run and kids to take care of. I'm an artist and a musician. I'm a single mom to boot! But when I get the highs, I really have a hard time functioning normally. I can't get much done because I have so much on my mind all at once. My music can't wait so my animals have to go hungry. My mind starts racing and I can't concentrate on my music. Then I get anxious so I have to paint but then dinner doesn't get made. My house won't get cleaned. and on and on it goes until I realize I'm manic and I have to try to stop myself before everything goes to pot. I feel awful. I can't breathe. I can't stop. I can't sleep. So I have to take a something like xanax or klonpine to calm myself and slow myself down. It is an awful feeling. It's not very fun. But the opposite pole is worse. the black pit of despair. That is the hell I don't want to visit. The topomax so far has been keeping me even keel. I have rapid cycling type II, so I can go up and down within days, hours, minutes. It's hard to tell when I will change cycles. It is something that is hard to live with. My daughter suffers from depression and is being treated with meds. She has her own pdoc and therapist. She is 14yrs old. I have to be strong for her.
Today, I feel a little down and weepy. I worked outside all day cleaning all the poopy I negleted to clean last week. My furry and feathered friends are no longer mad at me. Sometimes I panic because when I feel down like this I think that the topomax quit on me.
Is it okay that I am having a glass of wine tonight? I'm not a drinker. I just wanted one glass. I'm exhausted.
merry
Posted by headachequeen on November 13, 2004, at 21:42:32
In reply to Re: adverse effects, posted by merry on November 13, 2004, at 20:40:01
I always have something going on. I have a small farm to run and kids to take care of. I'm an artist and a musician. I'm a single mom to boot! But when I get the highs, I really have a hard time functioning normally. I can't get much done because I have so much on my mind all at once. My music can't wait so my animals have to go hungry. My mind starts racing and I can't concentrate on my music. Then I get anxious so I have to paint but then dinner doesn't get made. My house won't get cleaned.
Now this is close to the reality I live when I am not scared to death that if I don't watch my step I may do something to put myself into status epilepticus again...
oh life can be more challenging than I expected;
should have read the fine print...
where we differ is that while I ignore the housework until there is a need for it... company coming and I have an hour to tidy and vacuum this huge old place...
the dogs must be cared for and groomed and their training and socialisation is a priority over anything else and that includes the people....
that is always top of my list no matter what...however, one thing that I have not made properly clear, when I refer to 'artistic temperament'... there is no such thing ...
what I should be saying and I am so tired of misfiring neurons and crossed wires, is ' the so-called artistic temperament...
when people refer to the artistic temperament in talking about the difficulties in dealing with musicians or artists or actors or writers or whatever,
according to my psych, they are actually refering to this out of control condition that leads to the undone or the overdone and to the anger and tantrums and panics that accompany...so when I get cranky and hard to live with, it is because I cannot do all the things in a day that I think I should be able to do... all the things that my mind things I should be able to do and my body screams there is no time no time...
oh some day I will actually be able to put into words what I think and feel and what I actually mean...
I just hope that day comes when I am still able to remember what it was I was trying to explain...it really is not that simple a thing -- the zyprexa made it simpler I guess, as I no longer tried to keep all thep plates spinning -- I didn't even care if one or two of them were moving a little let alone spinning...
I just floated quietly through life...
and felt like a zombie all the time...
add the effexor and as my husband says, I was the walking dead...
probably never had a thought to worry about...kat
Posted by rainy on November 14, 2004, at 7:34:50
In reply to Re: adverse effects, posted by merry on November 13, 2004, at 20:40:01
About the wine, merry, I think yes it's OK, although more than one glass can be a definate downer. So can everyday drinking one glass, at least in my experience. The little warning on my bottle cautions only that alcohol can intensify the drowsiness topamax may cause. Pdoc knows the extent of my drinking and hasn't thrown a fit or anything. (She forgets stuff between appointments, though, which is sometimes useful and sometimes not.)
Are you on an antidepressant as well as the Topamax? In a way, having all those co-creatures dependent on you is probably to your benefit--you do have to be strong for them. I have the weird value that animals are as important as we humans are. I also know that feeding the cats and cleaning their box and not totaling my husband are often the most difficult tasks of the day.
Writing is coming hard this morning, or slowly. It's Sunday and I don't want to do what I gotta. Another project undertaken in fervor and now there it is, around my neck and not the least bit creative. It requires a smile and a bit of perkiness. Bleagh.rainy
Posted by rainy on November 14, 2004, at 8:06:28
In reply to Re: Topamax: weight loss/mild depression, posted by kwax on November 13, 2004, at 19:35:55
Hi Kwax. I'm not real clear about why your MD wants you to go on this controversial drug. Are you having mood swings? Problems with the eating disorders now? Is your physician an OB-GYN or Pdoc--where is she/he coming from?
When I first went on it a couple of years ago I was meaner than an I don't know what every time I went up .25 mgs even though it was over a period of time. At first I didn't attribute it to the increased dose and then Aha! occured. There was the tingling in face and hands that subsided. It's recurring in my hands now and I've been steady at 300 for six months. (I'm also plenty mean, but that's me.) Cognitive problems and weight loss began at 225. People here will tell you that if you control the rate at which you go up, the side effects will be minimized, but I respect your "nervousness" about taking this med with a baby and a child to care for.
I don't think Topamax is particularily good for depression, but I'm treatment resistant bi polar II. It has helped to keep my 47 year old eating disorder at bay. That's why I want to stay on it.You may have read some of the posts from Friday in response to a woman who wrote in asking about Topamax for weight loss. I guess you've informed yourself about the possible side effects. I think that most of them, including eye and balance problems have come true for most of us. I mean all of us have experienced at least one if not more. Problems with balance for me occured late at 300 mgs. That's not good with a baby or little person to take care of.
Good luck with your decision and the months to come!
rainy
Posted by Heady on November 14, 2004, at 9:17:57
In reply to for Kwax, posted by rainy on November 14, 2004, at 8:06:28
I was just put on 25mg of topamax and will go up 25mg every 7 days until I reach 75mg. I have an obsession with food and eating. My Dr. feels that this drug will help with my obsession and help me lose the 50lbs I need to lose to be healthy. Have any of you heard of this being used for obsessions with food?
Posted by stresser on November 14, 2004, at 9:30:35
In reply to for Kwax, posted by rainy on November 14, 2004, at 8:06:28
Hi everyone, I finally finished reading the posts, (without my daily soda, or coke as I call it)and am wanting to reply to everyone if that's possible. I don't know.
About the klonopin- I have taken .75mg per night for six years because I have restless leg syndrym, and now it's effecting the rest of my body. (yes, I do have my own ailments <GGG>)(gradma's words again) I think...no pun intended, that it's dulling my memory some. I'm almost 43, and I don't think I should be forgetting things like I am. I don't know if I am addicted, because I take it so my husband and I can both sleep, because I will wake myself and him up with my jerking in the bed. I have taken it on occasion, maybe once or twice for anxiety during the day, and keeps me from blowing-up!!I always feel much better when I have a project going on......I pretty much depressed when I don't. I am not bipolar, but much of what some of you are describing seems to be how I function. Maybe all of you are just fine? Maybe not bipolar after all? <G> I'm with you all, I have many things going at the same time, and it drives my husband crazy! I thought it was just me, and he was just lazy. Here I go with the "I" sentences.....sorry....but it seems like it get on a roll and go from one thing to another in a frantic pace. Almost in a panic, like it's gotta get done, NOW, and the world will end if it doesn't. The next week or even the next day, I have a diffent outlook and the panic is over until I get another bur up my ***.....and there we go again. Do any of you follow?
SEE? You are all just fine. -L
Posted by stresser on November 14, 2004, at 10:49:42
In reply to Is this for me?, posted by Heady on November 14, 2004, at 9:17:57
Hello,
You may want to go back and read some of the posts from the past eight weeks on Topamax. My daughter started at 25mg am and pm for one week, and increased 25mg every week, for binge eating disorder. She is currently at 225mg and it's just starting to kick in for her (I think). It starts working at different mgs. for different people, as you will find out with the girls that respond. Don't let me discourage you. Everyone on here will say go up slowely, because that will decrease some of the side effects. She went slower than her doctor prescribed, because I LISTENED to the advice of friends I have made on this board. Thank goodness I did. I sounds like you have a good plan and if you stick with titrating at a slower pace things will be fine. You are lucky to have found such a great place for advice and support, keep writing through the good and the bad days. Most of the people have been on topamax longer and will offer more advice, and more therapy than you can get in any office or group around. Nice to meet you. -L
Posted by kwax on November 14, 2004, at 14:47:54
In reply to for Kwax, posted by rainy on November 14, 2004, at 8:06:28
Thanks for the response. My doc who recommends the topomax is actually Doc/internist who specializes in migraines. He wants me to go on it right away because last time after my daughter was born I had many major headaches - this is to avoid them as much as possible.
I am definitely going to take the advice of everyone here: increase dosage very slowly and keep my eye out for strange side effects.
Thanks again for your help!
Kwax
Posted by redscarlet on November 14, 2004, at 15:09:46
In reply to Is this for me?, posted by Heady on November 14, 2004, at 9:17:57
Yes, this anticonvulsant medication is used to treat seizures, headaches, eat disorders, and for mood disorders.
Posted by rainy on November 14, 2004, at 15:17:10
In reply to Re: Is this for me?, posted by stresser on November 14, 2004, at 10:49:42
Heady, I sent you a post earlier and it went poof; I'm to lazy to replicate it. And by the way, not to take a dig at stresser's last post where she gave you some excellent advice, I do want to tell you that I'm not by any stretch of the imagination a girl. At 62, I'm probably the oldest woman on this board. (Sorry L if you read this-- my feminist nerve was awake today.) But I'm a newbie at Topamax--I've been on it since very early spring 2003. The only side effects I noticed were those I mentioned to Kwax and they began the moment I went from .25 to .50 mgs about two weeks apart. The food issue, bulimia, wasn't addressed until about 225 or above and that was a happy surprise. I'm not sure what you mean by food obsession. I still read menus, even those in the phone book with fascination. It has, at 300 mgs, curtailed my urge to binge/purge and it's primarily for that reason that I want to stay on this powerful and sometimes nasty drug.
So read everything you can, ask everybody you can and then make up your mind. You can alsys quit if it isn't working and the side effects will resolve, or so a neurologist who hates Topamax told me.
best wishes
rainy
Posted by headachequeen on November 14, 2004, at 17:17:43
In reply to Re: adverse effects, posted by merry on November 13, 2004, at 20:40:01
>
> Is it okay that I am having a glass of wine tonight? I'm not a drinker. I just wanted one glass. I'm exhausted.
>
> merry
>
>
With Topomax, as with most AEDs alcohol is not a wise idea...
for one thing as it usually warns on the label of the bottle and with the side effect warning sheets it can intensify the drowsiness effects...
but with Topomax the after effects are awful...
I have a sister-in-law who was prescribed Topomax for the seizure sort of symptoms she has related to a broken back; she quit taking it because of the alcohol thing... she is an alcoholic although she claims she is not as she only drinks beer...
and would not give up the beer for the spasm or whatever it is relief of Topomax even though it worked...
she is the one who warned me about the alcohol effect...
I am not a particularly alcohol inclined person...
the occasional glass of wine with dinner and rarely finish it although I do like the taste of some liqueurs... that almond one comes to mind and another one that I can't remember the name of either... when does this memory thing start to work again?????at any rate, I forgot about it once and had a glass of white wine with dinner and a liqueur after dinner...
the next day I knew I was dying...went to emerg because I was sure that this was the big one, Elizabeth...
they did too until one of the emerg doctors called the epilepsy clinic and came back to ask if I had imbibed at all the night before...
I will never try that again....
LOL
kat
Posted by headachequeen on November 14, 2004, at 17:29:38
In reply to Is this for me?, posted by Heady on November 14, 2004, at 9:17:57
> I was just put on 25mg of topamax and will go up 25mg every 7 days until I reach 75mg. I have an obsession with food and eating. My Dr. feels that this drug will help with my obsession and help me lose the 50lbs I need to lose to be healthy. Have any of you heard of this being used for obsessions with food?
AAAAAAARRRRRRGGGGGGGGHHHHHHHHHHHH
that is the scream heard all the way from the Canadian north woods...
there is no way you can or should or would even want to increase every seven days
NO MORE OFTEN than at TWO WEEK intervals and then only if your body has adjusted....
that is the only sensible thing my first neurologist had to say other than that this med would help with my migraines and that it had a weight loss side effect...it can also help with binge eating but it does not work overnight on anything...
I have a tendency to binge...oh my I have more confidence in the people here than in the psychologist I was seeing or in that second excuse for a psychiatrist <GG>
because I never admit to this to anyone...
even my husband doesn't know this one...used to do the hiding the eating routine...
binge on foods that appealed to me when there was no one around to see when I was really not satisfied with the way things were going...
chocolate and a number of other illegal foods were the comfort foods I craved to make me feel better about myself and I would simply binge for periods of time...
stop at the bakery on the way home and hide wonders of chocolate concoctions and confections and then stuff myself with them and hide the evidence... and I was well into my late twenties when this started...
and it continued off and on until early 2003...
the anti-depressants they used to try and control what everyone thought was depression didn't help as I piled on even more weight...
would go for days without eating to make up for the binges so that I maintained a reasonable appearance for the goldfish bowl...
but then it began to be a real battle between the food and the weight that accompanied the pills...
the topomax has curbed the secret eating and the urge to eat...
don't even want chocolate bars not even the dark chocolate with raspberry filling I saw when I was in one of the specialty shops yesterday...
now that is a first for the CBC and I think it edged the hockey strike off the news...
I have taken to eating one meal a day... chicken mostly with perhaps cauliflower or another vegetable and don't even look at baked potatoes drowning in sour cream... don't want them...you know, I don't think I like this Topomax very much...
I don't even want lemon meringue pie and we have this old family recipe that calls for a deep dish crust lined with dark baker's chocolate before the lemon goes in....this is a dangerous drug indeed and not in the way that you people think...
all of a sudden I am eating healthy stuff...
and craving protein....
I wonder if they really examined this drug before letting it into the country???? LOLI may have been sixty or more pounds heavier...
but oh I had fun before Topomax...
kat
Posted by headachequeen on November 14, 2004, at 17:39:21
In reply to Re: Klonopin and many projects, posted by stresser on November 14, 2004, at 9:30:35
> Hi everyone, I finally finished reading the posts, (without my daily soda, or coke as I call it)and am wanting to reply to everyone if that's possible. I don't know.
> About the klonopin- I have taken .75mg per night for six years because I have restless leg syndrym, and now it's effecting the rest of my body. (yes, I do have my own ailments <GGG>)(gradma's words again) I think...no pun intended, that it's dulling my memory some. I'm almost 43, and I don't think I should be forgetting things like I am. I don't know if I am addicted, because I take it so my husband and I can both sleep, because I will wake myself and him up with my jerking in the bed. I have taken it on occasion, maybe once or twice for anxiety during the day, and keeps me from blowing-up!!
>
> I always feel much better when I have a project going on......I pretty much depressed when I don't. I am not bipolar, but much of what some of you are describing seems to be how I function. Maybe all of you are just fine? Maybe not bipolar after all? <G> I'm with you all, I have many things going at the same time, and it drives my husband crazy! I thought it was just me, and he was just lazy. Here I go with the "I" sentences.....sorry....but it seems like it get on a roll and go from one thing to another in a frantic pace. Almost in a panic, like it's gotta get done, NOW, and the world will end if it doesn't. The next week or even the next day, I have a diffent outlook and the panic is over until I get another bur up my ***.....and there we go again. Do any of you follow?
>
> SEE? You are all just fine. -L
Oh L!!! Are you sure you are not living in my body???
I have to go to a sleep clinic in a week or two... one of the reasons they let me out... and I thought it was for good behaviour <g> ... otherwise I would have had to stay in until they could book me into theirs...
they think that restless leg syndrome may be what wakens me at night and then I can't get back to sleep when I waken... and apparently there is sleep apnea... whatever that is and I don't want to know...
of course, they don't care; they will tell me when they feel like telling me, just to burst my bubble...
maybe I will fool them and have one of my let's not sleep tonight nights...but your project approach sounds quite normal to me LOL (but then what do I know about normal <GG>)
I cannot sit and watch television unless I am reading a book and if possible knitting or doing something with my hands... otherwise it is time wasted...
that drives the other half of the partnership totally out of his mind...
he is the most relaxed individual I know... and I am anything but; I do not know how to relax... it is not in my vocabulary or my behaviour patterns...
we are so mismatched...
I really feel sorry for him at times...
I can't even read a book (when I can read that is :( ) I have one on the go in the bedroom, one in the living room, one in the big shoulder bag I call a purse and he calls a steamer trunk, and one that I can grab at a moment's notice if I think I need to ...
and it is worse since I came home...
I have this wild conviction that I can't explain that drives me to want to use every moment just in case...
right now I am taking a break from decorating the house for Christmas...can't wait any longer...
have to do it now... although we will have a tree decorating party in a week or so...
and another on my birthday...
we have four trees each year...
and I can't wait to have it all out where I can see it and enjoy it and rearrange it until it is perfect... usually the hour before it is time to put it all away
kat
Posted by bridgey1128 on November 14, 2004, at 20:16:20
In reply to Re: adverse effects » bridgey1128, posted by headachequeen on November 13, 2004, at 10:22:25
My problem, and I guess this is why I am bipolar II and not whatever your psych pinned whatever you have, is that I get psyched about doing something and then burn out. I can start something but not finish. I think that is the problem with bipolar II. We get excited about doing something and get our spoons in too many pots and then quickly get burned out and lose interest. The excitement is more about being a part of something rather than finishing it I think sometimes. I have no doubt of your creativity. I am very creative too, but like I said, my interest wanes in something that I once was on fire for. Now, being on meds, it's much better. Theatre isn't like that though. I guess because it's a general interest. I guess I am a lot like you though. I don't do something unless I think I will be the best at it. ;) I don't like NOT being. I am quite competitive. Anyway, I am fighting off being sick at the moment so I shall go back to doing that. Hope everyone is doing well and not sick!!
Posted by merry on November 14, 2004, at 20:46:41
In reply to Re: adverse effects » merry, posted by rainy on November 14, 2004, at 7:34:50
I didn't finish that glass of wine. I got tired and went to bed. I felt okay the next day. Thanks for your responses, I should know better. Topomax is a crazy med. I should be careful with it anyway. It was heck when I was going up in dose and now I was mixing it with wine. Am I nuts?
Yes, I am on anti-depressant, rainy. 300mg wellbutrin. Keeps my pants up.
Heady, please go up slower. Believe me, 7days is not long enough to adjust to topomax. Give your body at least 2 weeks before going up the next dose.
merry
Posted by rainy on November 14, 2004, at 20:55:11
In reply to Re: Klonopin and many projects » stresser, posted by headachequeen on November 14, 2004, at 17:39:21
L, I started Klonopin many years ago for the kicking-your-husband-out-of-bed issue. Prozac was the culprit and my legs waved around like sea grass to say nothing of bruising poor David until he complained. You're the first person I've heard speak of taking it for the same reason. Now off the SSRI's, restless leg syndrome has subsided.
What happened was that I developed a tolerance for it so that over the years the dose went from .25 mgs every day to 4 /day for the same effect. Pdoc thought that was adding to depression so off I went quickly, quickly, icky, icky.Now what does this have to do with your post?
This day is over; I just wanted to say I was glad the see your experience.
goodnight
rainy
Posted by Aussie on November 14, 2004, at 21:05:55
In reply to Re: Is this for me? » Heady, posted by headachequeen on November 14, 2004, at 17:29:38
> > I was just put on 25mg of topamax and will go up 25mg every 7 days until I reach 75mg. I have an obsession with food and eating. My Dr. feels that this drug will help with my obsession and help me lose the 50lbs I need to lose to be healthy. Have any of you heard of this being used for obsessions with food?
>
>
Yes I agree with the other person please make it two weeks rather than just one week. Otherwise the side effects will get you. Been there.
Aussie.>
> AAAAAAARRRRRRGGGGGGGGHHHHHHHHHHHH
>
Posted by bridgey1128 on November 14, 2004, at 23:56:54
In reply to Re: Is this for me?, posted by Aussie on November 14, 2004, at 21:05:55
I have restless leg syndrome and it only bothers me occasionally. I never knew what it was until a couple of years ago when I saw it mentioned in an article in the newspaper by Dr Donahue, one of those "write in" Dr's. I was like "OH MY GOSH! THAT'S ME!" My husband sleeps like a dead log so he wouldn't notice if I was thrashing around beside him or using a belt sander. It would make no difference to him. :P I just thought, what on earth is wrong with my legs! It felt like bugs were under my skin and I had to move them. It didn't hurt or anything, just was extremely annoying. I just had to keep moving them. Every now and then it will act up and become annoying but it has never been a bad problem. Not enough to have to take medication for it. I think maybe the Topomax has exacerbated it a tad. Not horrendously or anything but I have noticed it more so than I ever have. It occurs maybe 3 times a month or so rather than every other month. Like I mentioned, it's just an annoyance more than anything else so I don't really worry about it. I found out my dad also has RLS. Oh well. I guess I shall go rest my legs....
Posted by lorilu on November 15, 2004, at 2:27:48
In reply to Re: Is this for me?, posted by bridgey1128 on November 14, 2004, at 23:56:54
> I have restless leg syndrome and it only bothers me occasionally. I never knew what it was until a couple of years ago when I saw it mentioned in an article in the newspaper by Dr Donahue, one of those "write in" Dr's. I was like "OH MY GOSH! THAT'S ME!" My husband sleeps like a dead log so he wouldn't notice if I was thrashing around beside him or using a belt sander. It would make no difference to him. :P I just thought, what on earth is wrong with my legs! It felt like bugs were under my skin and I had to move them. It didn't hurt or anything, just was extremely annoying. I just had to keep moving them. Every now and then it will act up and become annoying but it has never been a bad problem. Not enough to have to take medication for it. I think maybe the Topomax has exacerbated it a tad. Not horrendously or anything but I have noticed it more so than I ever have. It occurs maybe 3 times a month or so rather than every other month. Like I mentioned, it's just an annoyance more than anything else so I don't really worry about it. I found out my dad also has RLS. Oh well. I guess I shall go rest my legs....
Hi,
Wow,
you knew you had rls. I don't feel it at all. I only do it while I am sleeping and I never knew why my bottom sheet was ripped off every morning. They finally figured it out when they videotapped me sleeping at the sleep clinic like kat. Interesting, now that I take the Topamax I don't remember the covers moving so much. I'll look tonight. I also have to schedule a followup appointment since I had a surgery for my sleep apnea. It will be interesting to see if I still have rls. I guess I could ask my husband but he is a sound sleeper. :)goodnight,
lorilu
Posted by stresser on November 15, 2004, at 6:25:23
In reply to Re: Is this for me?, posted by lorilu on November 15, 2004, at 2:27:48
I think I can remember some of you saying that topamax can cause depression, can you shed some light on that one for me please? My daughter told us last night she is really depressed again. It took about an hour to get that out of her, she will not talk to us at all because she doesn't like to deal with "issues." Is there an anti-depressent that doesn't cause weight gain? I'm thinking welbutrin is the only one that is the "lesser of two evils", but not sure. It seems that we are back in the same situation as before. Things seem to be getting better....WHAM! Was it all a dream? I woke up this morning with such a poor outlook on this situation, and I'm starting to think there really is no end to this. After two years, I really don't think there is going to be a change. Do we just fool ourselves for the sake of getting through the days? -L
Posted by rainy on November 15, 2004, at 7:16:47
In reply to Topamax and depression, posted by stresser on November 15, 2004, at 6:25:23
Hi, you're up early too. I don't believe Topamax causes depression, at least for me--it just doesn't work as an antidepresant. All the antidepressants and anticonvulsants have depression in their fine print list of adverse effects. All of the SSRIs, the tricyclics (trofranil, elavil, etc) usually (not always)cause weight gain. I did well on trofranil for periperphal neuropathic pain, but I was on low dose and seriously restricting my diet. I was also 40 something.
Serzone, which is still available in Canada but not in the States, doesn't cause much weight gain. It worked wonders for me until they jerked it off the market and at last visit, Ms. Pdoc refused to prescribe. So I'm on Deseryel, (Trazodone) at 200 mgs, dopey but not yet gaining. Also, as you have read, still depressed.Lamictal (lamotrignine, not sure if I spelled that right) is a wonder drug for treating bipolar II disorder. It has antidepressant properties as well as mood stabilizing effects and apparently many people do very well on it. It doesn't cause weight gain, according to the literature and my experience. It didn't work for me, but I'm what they call "treatment resistant." Love that nonjudgmental jargon.
For me, 15 was a higly emotionally volatle time. Only M knows: can she differentiate this current depression from the downs of the mood swings she's experienced? It was just Saturday, I think, that she was telling you that her mood is better. Maybe Topamax and Lamictal combined would work although I'm not a doctor and frequently don't know as much as I think I do. Is her doctor a psychiatrist, internist, GP or what, Stresser?
rainy
Posted by rainy on November 15, 2004, at 7:28:51
In reply to Topamax and depression, posted by stresser on November 15, 2004, at 6:25:23
I want to change my first sentence in previous post. Of course Topamax can cause depression. "Mood changes" is how that fun thing is usually listed.
Also there's been such a huge uproar over pediatric use of ADs that I really want to hear from you about M's MD--I mean is he a pdoc, GP, what?
There's a wonderful, comfortable informative website about depression and all the meds, uproars etc of its mamagement called McMansweb.com or some such--I'll get back to you on that. This guy, McMan is completely on the consumer's side. He goes to AMA and other physcian gatherings,pharmaceutical conventions, reads extensively and then passes the information he gleans on to us. It's free. You might find that site helpful--I'll get the address this morning.
rainy
Posted by lorilu on November 15, 2004, at 8:36:39
In reply to Re: Is this for me?, posted by lorilu on November 15, 2004, at 2:27:48
> > I have restless leg syndrome and it only bothers me occasionally. I never knew what it was until a couple of years ago when I saw it mentioned in an article in the newspaper by Dr Donahue, one of those "write in" Dr's. I was like "OH MY GOSH! THAT'S ME!" My husband sleeps like a dead log so he wouldn't notice if I was thrashing around beside him or using a belt sander. It would make no difference to him. :P I just thought, what on earth is wrong with my legs! It felt like bugs were under my skin and I had to move them. It didn't hurt or anything, just was extremely annoying. I just had to keep moving them. Every now and then it will act up and become annoying but it has never been a bad problem. Not enough to have to take medication for it. I think maybe the Topomax has exacerbated it a tad. Not horrendously or anything but I have noticed it more so than I ever have. It occurs maybe 3 times a month or so rather than every other month. Like I mentioned, it's just an annoyance more than anything else so I don't really worry about it. I found out my dad also has RLS. Oh well. I guess I shall go rest my legs....
>
> Hi,
> Wow,
> you knew you had rls. I don't feel it at all. I only do it while I am sleeping and I never knew why my bottom sheet was ripped off every morning. They finally figured it out when they videotapped me sleeping at the sleep clinic like kat. Interesting, now that I take the Topamax I don't remember the covers moving so much. I'll look tonight. I also have to schedule a followup appointment since I had a surgery for my sleep apnea. It will be interesting to see if I still have rls. I guess I could ask my husband but he is a sound sleeper. :)
>
> goodnight,
> lorilu
>
> I don't think the Topamax helped! I woke up and my pillow was on the floor, my legs were off the bed and my sheets were off! I also went to bed after 1am so I know I was tired! Guess what, I am still exhausted. Thank goodness for Provigil!lorilu
Posted by stresser on November 15, 2004, at 10:21:14
In reply to Re: Topamax and depression » stresser, posted by rainy on November 15, 2004, at 7:16:47
She is seeing a Physchologist and a general MD. They are working together on her situation. I feel uncompfortable asking for medications because I have done it so frequently. I feel like she's on one, and then the other like a turning wheel. He's going to think I'm crazy. Is it worth it to be on anything? -L
Posted by headachequeen on November 15, 2004, at 13:21:02
In reply to Re: adverse effects, posted by bridgey1128 on November 14, 2004, at 20:16:20
> My problem, and I guess this is why I am bipolar II and not whatever your psych pinned whatever you have, is that I get psyched about doing something and then burn out. I can start something but not finish. I think that is the problem with bipolar II. We get excited about doing something and get our spoons in too many pots and then quickly get burned out and lose interest. The excitement is more about being a part of something rather than finishing it I think sometimes. I have no doubt of your creativity. I am very creative too, but like I said, my interest wanes in something that I once was on fire for. Now, being on meds, it's much better. Theatre isn't like that though. I guess because it's a general interest. I guess I am a lot like you though. I don't do something unless I think I will be the best at it. ;) I don't like NOT being. I am quite competitive.
>> Oh, Bridgey I never realised how competitive I was until a few years ago and it suddenly dawned on me that I could not stand to be second to anyone in anything...
I just do not do anything that I do not think I will be better at than the majority of the people doing it...
so maybe I miss out on some of life's experiences but at least I am not disappointed in my performance... <g>I find that burn out is a constant threat and I also find that there is a risk of a new idea becoming all consuming before the present idea reaches completion...
I need someone to keep me on task...
I am a master of multi-tasking as long as the interest remains high...
as soon as it becomes ordinary and the interest lags, then it is difficult for me to maintain the doing...
when I was teaching and the students were not a challenge it became difficult to get up in the morning and get to work...
why should I bother, there was nothing there to interest me...
when I had students with personality problems or children with extremely high abilities who were easily bored and had to be constantly challenged, then I couldn't wait to be at school and hated to leave as I was constantly planning ways to reach these ones...
one year I had an entire class of brilliant students, in the days when they still 'streamed' students... it was wonderful... I lived and breathed my work...
then when I found my way into open-line radio and talk and information, I hated week-ends... couldn't wait for Monday morning to roll around...
week-ends were a loss to me because I was not at work...
put in eighteen hour days with the greatest of joy because I was so alive in what was I doing...
my identity became what I was doing... and I lost myself in it...
my whole life was this artificial high... and when a particular show went really well I was so high up that I was talking to the man in the moon as I flew past...
I mean, think of it, I was paid to tell people what I thought... got a raise one day for asking a person if she was born stupid or had to work hard to get that way... another caller the same day drove me to ask her if it hurt to be so dense or was it a painless process, probably because her father and mother were fraternal twins...
we were talking about a severely handicapped child whose only reaction was to pain, one whose parents were fighting the provincial govt in an effort to prevent yet another surgical procedure that would prolong his agony... he was mentally handicapped, physically handicapped, blind, deaf, and I forget what else... had a limited time to live and someone thought a shunt of some sort would lengthen his life by a few weeks...
there would be a great deal of pain involved in the surgery and the aftermath and pain was the only sensation to which he reacted...
these two women called in to talk about their nephew in one case and neice in another who were mentally handicapped
The one kept talking about 'it' -- she is the one I asked if she were born stupid...
the other stated that this child was born this way to punish his parents for something they had done and they had to suffer the pain so he had to have the surgery... actually I said a lot more and expected the network owner to strangle me.
Instead he gave me another five an hour on top of the first raise...
apparently the switchboard was lighting up like the milky way with people in support of me...
those days were wonderful...
then the network was sold and sold again and the live people replaced by wire feeds...
all of a sudden I had no identity at all until I found a new gig...
it took me a couple of years to discover me again...
that was the down part and it was so black...
the black hole of Calcutta had nothing on the black hole of me...
it had to be something I had done to cause this and there was no rationalising with me...
I would not go out of the house for months...
try getting a job without leaving your bedroom...
even in radio where they do not have to see you, it is hard to do...Hey, I never said I was rational...
have to be more than a little irrational, totally off the wall and extremely bizarre to get by in that business....and ooooohhhhh soooooo competitive.
and that goes for the music field too...
if one does not have that drive there is no way one can get up and sing a role and put it across...
that drive has to be there or one cannot become Thais or Buttercup or Marian the Librarian or anyone else... for that matter, not even one's self I learned eventuallyNow if I could just find me these days...
kat
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