Posted by bookgurl99 on July 12, 2003, at 8:43:04
In reply to Re: --books, posted by lostsailor on July 12, 2003, at 8:29:47
tony,
thanks for your message.
>
> You are bright and forthright here, be the same in the astute and sometimes condescending world of medicine and HMO's, but don't blow it off.i get the feeling sometimes that doctors don't want you to be 'too' bright -- if you understand the mechanism that they understand, think _you_ are a hypochondriac, while _they_ are educated.
>You might even want to summarize it all on paper and rehearse what you want to say or present the paper. I know that totally freaked and knowing I may misarticulate things or forget to say them at all, I have given docs notes and had great results partly due to the part that I can read it later and "see" that I sad all I wanted.this is a good idea. i may write it down the latest symptoms, compare that to symptoms and tests i noticed last year.
i guess i just really wanna see what that eeg would say.
* * *
funny, part of what's freaked me out is that i wrote down a lot of symptoms last year when this first came on. after my pdoc's visit recently, while looking for something else, i found that sheet. it scared me to see what i now 'accept' or blow off as a non-serious symptom (short term memory issues, blurred vision, slower reading comprehension), compared to what bothered me then.funny, btw, i brought my gf and friends to my last battery of tests. i think the fact of having a gf was viewed as more evidence of my craziness. and having friends along left the meds convinced that i'm 'codependent' and 'attention-seeking.'
question: why was i getting treated that way? i can't figure out why no staff really seemed to take the time to piece together the puzzle. is it because i may have seemed so anxious upon initially arriving? (and -- aren't they taught to accept anxiety in patients who are facing cognitive changes?)
the one relief out of that, btw, was a nice old neuro i met at the university of chicago, the one who dx'd me with migraine disorder. when my neuro reflexes came back unusual, he said "please. reflex changes are not caused by anxiety. this is not all in your head." it was so relieving to be _believed_.
> Keep up all your hard work.
>
> Hugs and prayers,
> ~tonythx *sniff*
>
poster:bookgurl99
thread:241128
URL: http://www.dr-bob.org/babble/social/20030704/msgs/241139.html