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Handbook » Lonely

Posted by bimini on January 4, 2005, at 11:04:18

In reply to Re: how did you define your therapy goals?, posted by Lonely on January 2, 2005, at 12:49:35

> It sounds like we might be dealing with similar issues whether directly or indirectly. the neuropsychologist is nothing more than a tester who seems to base life-influencing reports mostly on the moment of testing without enough long term multi source evaluation.

Maybe the objective was to be as objective as possible, evaluating the results uninfluenced.

> Perhaps it's different in different parts of the country or maybe just differences between neuropsychs. We're in the SW US.

I had thought of that too. After I was bounced around like a hot potato I searched for a Neurologist who specializes in trauma. Had to display a tempest to get the referral. I could go on and on here...

> I'm intrigued that you also have apparently asked for concrete or objective info and finding it hard to get. I noticed the same thing. The first one was really squirrely.

After two years of asking the same questions I did get some answers. Not the answers I had wanted, but calming and confirming what I knew in my heart. Also, I prefer a Doc who admits he doesn't know to one who belittles or ridicules my concerns. I remember in the beginning I was overwhelmed with all the changes and confused enough that if I were given M and M's to take three times a day I would have believed in its magical powers.

> for tangible resources peratining to "what do I do when he forgets to fasten his pants, puts his shirt on backwards, leaves a pan of grease on the stove with the burner on?" etc.

A handbook would have been a good idea for me too.
"How do I stand without falling over? How do I dial a phone number? Where did words go? Where did everything go? How did my toe get purple? Why don't I know what a shovel looks like?" Warnings about cooking, candles, climbing on ladders and forgetting it isn't the ground. Driving? Working?

I speculated the reason, for the lack of practical help I received, was circumstance of injury, litigation, insurance policies and ignorance.
It disturbs me to hear this problem to be wider spread.

bimini


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