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Porphyria, Fish oil » Jaynee

Posted by tealady on September 11, 2004, at 20:27:16

In reply to Interesting tidbit on porphyria................, posted by Jaynee on September 11, 2004, at 14:53:26

Hi Jaynee,

I'm interested in this too. Here's an old post of mine. http://www.dr-bob.org/babble/20030828/msgs/255255.html

Whole thread on porphyria I think?
The link in my post doesn't work any more..new link below
http://www.nutritional-healing.com.au/content/articles-content.php?heading=Pyroluria

I did ask a doc to test me as I respond well to all the supps, I also need carbs in my diet..and I don't take to fish oil well..but he said my urine would be pink..and it isn't?


Re fish oil: I tolerate a max of one cap and that took 3 months of acne, "gas" etc to get onto.
Tried in to increase to 2 caps a day recently..but acne etc ..so gave up. Probably won't take fish oil caps any more after I run out.
I don't really uinderstand this much..I had the impression that pyrroles (or kryptopyyroles) showed in urine, maybe faeces if one had porphyria?


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poster:tealady thread:385742
URL: http://www.dr-bob.org/babble/alter/20040901/msgs/389848.html