Posted by blueberry on November 22, 2006, at 18:15:14
In reply to It's Treatable. No, it's not., posted by Reggie BoStar on November 22, 2006, at 4:07:20
When doctors and medicines fail, I say take the reins and do it yourself. It takes a lot of research at pubmed.com. Go there. Study things you haven't tried.
While there are some of us like you and me that are extremely hard to treat and any hint of wellness is short-lived, I do believe still and have faith that good times can be had. It's just that we've been looking in the wrong places. Serotonin reuptake inhibitors failed? Fine. Wellbutrin failed? Fine. Mao inhibitors failed? Fine. That just tells me that the last thing we want to do is force the brain to slow down its firing by blocking everything up and causing a dammed-up flood. I just try to use this same kind of in-your-face logic for whatever. I believe there are lots of clues available from your previous med experiences.
Ever tried natural stuff? Rhodiola rosea? St Johns Wort? How about acetyl-l-carnitine that is comparable to amisulpride or amineptine in clinical effectiveness. Of course some would say if heavy duty meds wouldn't work, then how could a simple herb work? Well, they aren't so simple. They actually do a lot more than meds, in terms of reacting with all kinds of things besides just the three basic neurotransmitters.
For meds, how about tianeptine? Order it overseas. For that matter, how about anything that is distinctly different than anything you've tried? Actually, since everything that makes sense has failed, then go for the things that don't make so much sense. Logic again.
Lithium? Zyprexa? Buprenorphine? Dopamine agonists? Alprazolam? Ritalin? Adderall? Tianeptine? Amisulpride? Whatever...take a look at all the things you haven't tried and study them.
For trials, don't waste your life on them. Give each thing 2 weeks. If you haven't felt a hint of benefit in 2 weeks, forget it. Go through a very short withdrawal, versus a long nasty one of a long trial, or just switch straight over to the next thing. It is my belief, and will be debated by many, that in people like you and me when the right molecule is found, the body will let you know in a very positive fast way. Could the molecule work if given longer than 2 weeks? Maybe. But your experience says no. You would be sustaining the same lifelong pattern it's always been.
Basically what I am saying is it is time to think outside the box, time to take over your own care, and have faith. Meanwhile, I agree with the previous posters that counseling would be very helpful. Likely not a cure, but a definite lift.
And when anyone asks you if you've checked with your doctor on whatever you are trying, just say he's already had his 20 years of chance and he's probably home sipping wine without even a thought in the world about me. It would not surprise me at all if the molecule that ends up helping you a lot in the longterm is one that is available at your health food store or from an overseas mailorder pharmacy.
For starters, go to the health food store or drug store and buy acetyl-l-carnitine, start at 250mg a day and if it isn't too stimulating take more...clinical trials were 500mg 3 times a day. If it is going to help, you will know as early as day 1 but definitely within 2 weeks. You might be surprised.
And if you aren't already, get Nordic Naturals fish oil that is 425mgEPA and 100mgDHA. Take two a day. You might be surprised.
poster:blueberry
thread:706067
URL: http://www.dr-bob.org/babble/20061117/msgs/706280.html