Posted by Active Retiree on May 15, 2006, at 18:30:13
I have a non-epileptic movement disorder. These occasional episodes cause my muscles to tighten, fatigue, and after brief jerky movements, I'm OK. I do not lose consciousness, thus the diagnosis as non-epileptic seizure disorder.
Over 15 years ago I had a severe leg cramp/spasm that tore my calf muscle. During recovery and physical therapy, I was found to have very brisk reflexes. Movement or exercise would cause brief erratic movements in my neck, legs, and arms. Forget Pilates, that guarantees a seizure.
A few years ago, a more severe episode required hospitalization. My new neurologist, a movement disorder specialist, prescribed continuing Baclofen, and added an anti-seizure medication (Keppra) and Effexor. I asked, "Why Effexor, since the label said for depression." He said it would compliment the mood effects from the Keppra.
I have never had depression or anxiety. I am outgoing, gregarious and enjoy a leisurely retirement with family and friends. I am a very active person. After thoroughly reading the literature that came with my prescription, it's serious stuff that requires closer monitoring than a once a year check-in with my neurologist (and no lab tests).
Now side effects interfere with my daily activities. I need more info to have a better understanding of why it is appropriate for my condition. Or perhaps it is inappropriate and I should stop taking the medication (with doctor supervision)?
poster:Active Retiree
thread:644400
URL: http://www.dr-bob.org/babble/20060515/msgs/644400.html