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Re: topomax » Karla

Posted by Storm Rider on February 14, 2006, at 21:38:57

In reply to Re: topomax, posted by Karla on February 13, 2006, at 21:22:21

> I was up to 900mg and it didn't have any weight loss effect on me. But my motabolism is different than yours. My dr said at 200mg is where you may start to see your weight effected.

I don't know about the 200 mg... I began to notice the weight change within a week of starting the topomax...
it was only a little but it was a real jump start to my attitude and self esteem after having come to terms with the weight gain... I had always been extremely slender... all right, thin :(
my husband always told people he married me out of pity because someone had to feed me <g>
When we married I was the same 5'6" I am now and weighed under 100 pounds...
suddenly thanks to the meds I was on to help me deal with the emotional roller coaster I was on because of the change in the epilepsy, I weighed double and I was not pleased...

when the neurologist told me that there was a second side effect to the topomax, it caused weight loss, I said I would have to think about it..
and five seconds later said I would try it LOL
anything to eliminate the migraines and control the seizures that were escalating (tegritol on its own was not doing the job and his initial response was to increase the dosage to some grotesque amount until I mentioned the migraines... never thought I would be grateful for blinding headaches!!!!)

The topomax had a definite effect on appetite in my case, almost from the start...
I wonder if it is a mental thing? Because the doctor said it would affect weight, I expected it to cause me to lose weight therefore it did???

At any rate, I am now strongly addicted to protein, chicken and salmon, and salads... I don't eat grains at all as I have discovered an allergy to them and am a lot healthier since that...
Today's jean and skirt size is a three...
and the doctors, the orthopaedist and gp, are worried about my weight...
seems to me we have been here and done that at the other extreme...
the words anoraexia are being bandied about again... sounds like my twenties all over again...
but it is just a matter of not wanting to eat the heavy meals and the junk stuff...
sort of a mental conditioning...
I am no longer able to eat large meals and no longer want the junky foods... but protein foods call my name...
I'll swear I hear them <GGG>

I tried to diet and follow the nutritionist's regimens but it didn't work, the weight would come off for a while then pile right back as I found myself back at the refrigerator or snack food counter...
it hasn't happened -- yet...

I have been told by the mri techs who worked on the study with the one neurologist that if I stop taking the topomax the weight will come back...
that is certainly a worry of sorts, although the bigger worry would be the return of the constant seizures...

and that is not an option... since my last stay in hospital we finally have the day time nonsense stopped and the clock returned to its normal patterns of nighttime seizures...
for that matter, I have not had a seizure in ten days...
I feel as though I have wond a gold medal at the Olympics!!!
At the moment I am on 600 mg of topomax.. half in the morning and half in the evening....

and for the person who was on 900....
apparently the literature available indicates it is safe up to 1600 mg a day but only therapeutic up to 800 mg a day...

makes one wonder why it would be prescribed at doses over 800 mg doesn't it...

One of the doctors in ER was doing some research on it the last time I was in and told me that when he increased my dosage to 300 in the morning...
he also told me he thought I should go right from 200 to 300...
when I was stable enough to argue, I explained why that was not a good idea...
figured it might help someone else down the road...
and besides, I cannot pass up a chance to argue... it meant I was feeling much better <s>

kat


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poster:Storm Rider thread:5053
URL: http://www.dr-bob.org/babble/20060212/msgs/609612.html