Posted by headachequeen on June 18, 2005, at 21:44:30
In reply to Re: Kat and everyone » headachequeen, posted by ed_uk on June 18, 2005, at 8:20:29
> Hi Kat,
>
> Gosh! You need a neurologist who will listen to what you are saying.
>
> Tegretol can lower the Topamax blood level by about 40%. See the interaction table......
>
> http://www.rxlist.com/cgi/generic2/topiram_ad.htm
>
> It's near the bottom of the page.
>
> Kind regards,
> Ed.
>
Well, Ed, in a way this one is a major step up...
the first neurologist, the one who actually diagnosed the problem --- I had been diagnosed as a child but never told (my mother views any illness as a sign of weakness and an affront to the family) and as it seemed to never really interfere why bother with it, then again as a teen-ager and when I was pregnant with my son... two drastic seizures brought about the diagnosis, but everyone around me thought that I had fainted...
ambulance called and all that but it was attributed by others to other causes and I managed to keep it all from the world until things began to change for the worse in the last ten years..
then dramatically so ...
enter the first neurologist, who is actually head of the head-ache institute and really good at that stuff!!! but he did recognise the seizure activity in the eeg and start the tegretol then add the topomax because I mentioned my migraines...
no more migraines but the seizures were never under control...so he referred me to this one who is the head of the epilepsy centre in this part of the province and considered by those in the know to be the leading person in this part of the country...
oh joy... I think my vet could do better at times...
my primary care insisted on a referral to someone who could deal with things better and this is the one to whom I was referred..
I realise that had the referral not happened, when that statis episode occurred, I would not be typing this today and I am grateful and give the man full credit for saving my life, although it was my own primary care physician who stabilised me enough to have me transferred to the other hospital for treatment and tests, in consultation of course with the neuro,
but in the meantime, here we are with this big nothing happening to accomplish anything...so now I am armed with information I can use...
and I thank you hugely for the help....
it is summer and there are so many things screaming for my attention and I would like to be able to be there...
my latest ambition is a folio sort of book on hands at work...
have some photos of a jewellery designer working on his craft, including Faberge eggs in need of repair and an elderly woman peeling potatoes, and so on and so on...
and these old abandoned farm buildings and houses in this horrendously hard farming area where the evicted crofters came when they were replaced by sheep... portraits of the growth of a country...
they have to be taken and I have to be able to stand and lie and kneel STILL-ly to take them ...
blurred vision and mind cannot do it, nor can wobbly hands and wobbly mind...so, tegretol and I are now really at war... and I am better armed...
and another day with no problems... it is wonderful...
and still no headaches...
2 and a-half years...
now, what has tegretol done for me lately???? LOLthanks again and blessings
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20050617/msgs/515223.html