Posted by headachequeen on December 14, 2004, at 19:09:39
In reply to Going to the Max, posted by rainy on December 14, 2004, at 5:42:35
> Week two of titrating up from 300 to 400 mgs Topamax. This from a woman who wanted to go down to 200. I've been at 325 for a week without too much serious forgetfulness (other than letting our expensive, anniversary present tea kettle boil dry)and plan to stay here for another week before upping to 350. It was at 350 last year that I became disorented while driving and couldn't hold my own in a conversation, so I'm leery of it.
>
Rainy, I am here... but just LOL
spent a delightful ???? time at club med and I don't mean the tropical club Med either while they attached more electrodes to my head and ecg wires and I forget what-all to try and figure out what it is that does or does not make me tick...
then the sleep lab...now, that was an experience ...
the tech informed me that I do not sleep very well... no kidding? I do not have sleep apnea; she thinks that the nurse who told me that I do was really missing seizures... they were supposed to be checking every few minutes to see if they could catch a seizure occuring to see what happens when it does and the tech figures (and I have secretly thought the same thing) that the sudden stoppage of breathing accompanied the start of the rigid comatose type of tonic clonic seizure I have at night... she also suggested that perhaps this nurse did not belong on a neurological service if she could not recognise this behaviour...
another thought that was occurring to me as she was suggesting what the breath stopping might be...
she is going to hand the stuff over to the doctor for evaluation of course...
besides, apparently as soon as I reach deep sleep I waken; she told me I wakened at least ten times during the night in a soundproofed room so it is not the neighbour's dog barking or a car door slamming that wakens me, it is me or something in me...
she said it was the oddest thing... I gave her permission to say it was wierd <g>... and she would be interested in discussing it with the sleep doctor who would be talking with my doctor and the neurologist about it...
here we go again thinks I...
so in a couple of weeks I meet with this doctor and perhaps with the other two at the same time to see if there is some way to get all this sorted and have a normal response to sleep at least...
or to see what effect the epilepsy is having on my sleep or vice verse....
tomorrow it is off to the clinic and to meet with the neurologist in charge or whatever he is called...
such fun...
I can't think of a better way to spend the week...
not
meanwhile I have been reading articles and things that keep popping up about depression and weight and sleep and so on...
there is a definite link between too much sleep and the wrong kind of sleep and overweight...
and now a definite link between the lack of omega3 and depression. we knew that, but a lack of it is a definite link to post partum depression and there is considered to be a definite link to bipolar...
going to dig out the info and post it...
this psychiatrist who is preeminent in his field to quote someone or other, insists his patients treat themselves to one salmon oil capsule a day...
I am not depressed but I am surely anxious about this sleep thing... another thought the tech had was that the treatment for this deviated septum might have helped if there had been sleep apnea but she still suspects it is seizure related, so why the snoring (and I was always taught that ladies do not snore... sigh another rule of etiquette broken)
and back to this broken sleep and constant fatigue which does not help the seizure thing...
so I am going to try the salmon oil thing...
I will even eat salmon if it helps...
can't hurt....
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20041211/msgs/429620.html