Posted by headachequeen on November 28, 2004, at 21:17:25
In reply to Topamax/Zonegran eating disorder, posted by redscarlet on November 28, 2004, at 19:04:05
> Kat ~ Thank You for writing all that up about emotional eating.
> So I really don't feel like I can tell him what's going on with me for fear he would put me on some kind of weight gaining med, one of my biggest fears !
I am on three AEDs that they hope will eventually be balanced to control this chaos for a couple of years at which time the whole dance begins again ... and all three have an appetite suppressant side effect... one according to the warnings that accompany the first bottle of tablets "may" have appetite suppressant potential...
the other two, topomax being one of them of course, definitely are known to have suppressant capabilities.
Since I came home from hospital I have lost another five pounds...
and I am at a place where I really don't need to lose any more,and my husband and friends are at me constantly about my weight and about eating.
It is becoming an issue again, almost as great an issue as it was when I was an anorexic teen-ager and young adult...
most of the time I have no interest in food. Left to my own devices I can go a day or so and not realise that I have not eaten unless someone asks me if I have done so...
then Friday and Saturday of this week, I was hungry constantly... two meals each day and a sandwich around three a.m. Saturday morning; despite all these meds that suppress appetite and a disinterest in food, I was hungry...
actual hunger pangs in the case of early Saturday morning...
I don't know what it is... maybe the phase of the moon???
I do know that I have another seizure coming on, all the warnings are there for me, and now I wonder if that is connected...
you know, feed a fever and starve a cold or whatever that old adage was,
perhaps seizures need food to function too...but I think that we have to face the fact that these meds are not going to always be able to overcome our own drives 24 hours in ever seven days of the week....
One of my concerns here is the fear of being able to openly discuss a concern with a doctor for fear of being put on a med that will cause a problem be it weight gain or whatever...
we as patients should have a strong input into the situation...I remember being so relieved to know that my neurologist was not going to remove topomax from my protocol... I could not consider the possibility of a return to migraines or of weight gain that might ensue should I quit taking it...
then I remembered what I had read about so many other AEDs and the side effects they have...
and I would not consider taking them at all...followed by the thought that I have to have some consideration in all of this.
It is my body that has to deal with these chemicals, so I must have some say in what goes into my body...We are all too often in the position of feeling that we have to accept what ever is written on the prescription without question...
and I think that is wrong...
we have to be allowed input and we have to insist on some input. We may not have medical degrees and any great knowledge of pharmacology, but we have to live in these bodies and with the aftermath of these medications...
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20041128/msgs/421604.html