Posted by headachequeen on October 22, 2004, at 14:34:14
In reply to Are you OK, Kat?, posted by Stressee on October 22, 2004, at 13:29:19
> Kat, I haven't seen any posting from you and am wondering if you are ok? -L
Hi L!!
I am just now catching up on e-mail... and what a mass of it there is... why do people think I want to read the latest joke(??) going the rounds of their offices... sometimes it is barely even funny... and there are so many of them...Thank you so much for caring... it really matters...
I am trying so hard to beat this and I am going to beat it... just not today I guess... and knowing that you and the others are out there really means a lot...
I have been in a mass of these wretched seizures... now if only I could send them in a series of e-mails to people.. wouldn't that be hilarious?
The dry mouth and the constant feeling of numbness in my mouth and in my lips... and the constant lip-licking... I may have no lips left when this is over...
and the sense of being in some sort of balloon that will not open and let me out...
I am really tired of this nonsense. I do not know how people who suffer the really hard epilepsy with the strong seizures bear it. They have my sympathy, believe me. I have been unable to read all day and most of yesterday and I am ready to whine to anyone who will listen.
Walking is an experience, believe me...
I read or heard some where that lip-licking is a sign of alcoholism -- well, with the constant lip-licking that I am unable to control and the staggering walk, I am sure that people here think I am a knock-down staggering drunk and should check into a clinic...
and the speech slurring... oh, that must convince them... I can hear them now as they mutter when I stagger past or as they walk past me as I try to stand upright, but sway from side to side (my balance is shot!)...
Then we have the speech itself as I try to put words together properly and come out with words that are really not words but parodies of words...
digraphs especially become switched... th is misplaced all the time... as is ph and so on...and awayyyyyy we go...
I am so tired all the time...
this is not fun... if it were not for the fact that I have lost two pounds I think I would simply start throwing things...
and may still do so...
I am angry ... we can put a man on the moon.. and all that stuff... then why can I not conquer this epilepsy ????meanwhule I am going to read all the posts to psychobabble now... and probabluy post to most...
be prepared for some grouchy ones because I am shaky and grouchy in my balloon...
can barely read and am forced to reread everything... but I shall get tehre...
kat
poster:headachequeen
thread:5053
URL: http://www.dr-bob.org/babble/20041018/msgs/405977.html