Posted by susan C on September 24, 2001, at 16:41:37
In reply to Re: elusive putative seizure disorder, posted by Squiggles on September 24, 2001, at 15:09:49
Dear girl,
keep looking for the lucky charms, dont give up the fight, question authority, welcome home, you are not alone, the truth is out there, it could be worse, it could be better, thanks for thinking of us, me, I am thinking of you, hope you get better soon, get well soon, you know yourself better than anyone else, my next job will be writing for a greeting card manufacturer. Just being silly.
your cyber co-seizure possible symptom dizzy unverified, unconfirmed all in normal ranges
mouse on the go-roundsusan C
> > Hi everyone.
> >
> > Last week (Tuesday, I think) I had a seizure (complex partial) or something. My BF says that when he got home from work, he found me slumped over at the computer, making gurgling sounds (he thought I might have swallowed my tongue or something). He was really scared because of what happened back in February (see http://www.dr-bob.org/babble/20010327/msgs/58035.html). After I appeared to be conscious again, he said that I was crying and acting scared and so forth.
> >
> > He called 911 and a whole bunch of cops and EMTs descended on our house (at least they didn't send in the fire department). The first thing I remember after I blacked out was being in my room with my boyfriend and several EMTs and cops. I was sobbing, for some reason of which I'm not aware. (Something similar happened in February -- I was in and out of the coma, but when I appeared "awake" I was acting scared and crying, according to my BF and parents.) I was sort of confused and disoriented, so I just went with the EMS folks. I spent a couple nights in the hospital, which is why I haven't been posting lately. My mother and sister came into town to visit me. My CAT scan and EEG were both normal. I haven't gotten the results of the blood tests yet (I think they did the standard ones plus a desipramine serum level and something else, I can't remember what). My pdoc gave me a script for a low dose of Trileptal. (Well, he says it's low -- I don't know what the typical therapeutic dose range is for oxcarbazepine. I'm taking 300 mg/day.) Does anybody have anything to say about it, good, bad, or otherwise?
> >
> > Anyway, it looks like I'm going to be seeing a neurologist, although I don't know how good the chances are that they'll be able to find a cause for this episode (or previous ones).
> >
> > I hope you're all well.
> >
> > -elizabeth
>
>
> My sympathies for the rotten time with this particular
> drug, Trileptal. I am beginning to wonder if many
> people are reporting "seizure-feeling" like disorders
> of this type. I had a similar experience upon withdrawing
> from Rivotril, 3x, each time getting worse, from stroke like feeling
> on the arm, to left side "seizure feeling", and then this
> year "seizure feeling" on both sides of the head. My husband
> came home from work immediately when he saw me post that
> I was having an electric brain storm in the head, and I lost
> my memory and my ability to walk for a while. I had extreme
> headache and came in and out of "coma - like" sleep
> and I was sick for a month. My doc said "withdrawal" - the
> emergency doc said "not seizure", and the emergency doc who
> came to the house, ordered EEG EMG and spinal, which I will
> get next week.
>
> These head effects may just be too new to be classified.
>
> I hope you are better, I wonder if you forgot a pill possibly?
> I'm not sure if this is any help, but I thought you might
> like to know that I too have gone through surprisingly
> interesting side effects from psychoactive medication.
>
> best wishes,
>
> Squiggles
poster:susan C
thread:79454
URL: http://www.dr-bob.org/babble/20010917/msgs/79475.html