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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 7 of 7. This is the beginning of the thread.
Posted by Brianscott on September 21, 2000, at 20:25:21
Is there anyone out there with Adults Tourettes Syndrome? I was diagnosed 5 years ago and have tried many things. The serious drugs that have helped some Tourettes patients are also antipsychotics and have horrible side effects. Antianxieties help a little, but I don't think treat the source, just a small margin of the symptoms. I'd heard Nicotine patches can really help and tried for a brief time. I'm not sure if they worked. Since Tourettes is primarily a children's disease, everyone, including the Tourettes Association practically ignore adults with the affliction. I guess I'd just like to communicate with others that go through what I do since I've never actually met or spoken with another adults Tourettes sufferer.
Posted by stjames on September 23, 2000, at 17:14:56
In reply to ADULT TOURETTES, posted by Brianscott on September 21, 2000, at 20:25:21
> Is there anyone out there with Adults Tourettes Syndrome? I was diagnosed 5 years ago and have tried many things. The serious drugs that have helped some Tourettes patients are also antipsychotics and have horrible side effects.
James here....
If you have not tried AP's in 5 yrs the newer atypicals have a much better side effect profile,
many do not get significant side effects. You might also try asking this question on the babble page. Folks there might know of some more non-AP
drug treatments.james
Posted by noa on September 24, 2000, at 15:23:59
In reply to ADULT TOURETTES, posted by Brianscott on September 21, 2000, at 20:25:21
YOu might want to look into the biannual Tourettes Syndrom Association conference, coming up this November 3 in Washington, DC area. I was there once with my cousin, and there were SO many adults with Tourettes!!!
I bet TSA has a website.
Posted by noa on September 24, 2000, at 15:26:51
In reply to Re: ADULT TOURETTES, posted by stjames on September 23, 2000, at 17:14:56
BTW, I heard a statistic recently, don't know if it is accurate: for about 1/3 (I think) of kids with Tourettes, it eases up in adolescence. But for most others, it continues. For some others, they have really complicated cases, where tics are the least of their problems, as the syndrome includes rage attacks, OCD symptoms, etc.
Posted by Brianscott on September 24, 2000, at 16:29:24
In reply to Re: ADULT TOURETTES, posted by noa on September 24, 2000, at 15:23:59
> YOu might want to look into the biannual Tourettes Syndrom Association conference, coming up this November 3 in Washington, DC area. I was there once with my cousin, and there were SO many adults with Tourettes!!!
>
Thanks for the feedback! I did hear about that conference. I wish I was able to go. Perhaps they tape them. Have you heard anything about the Nicotine patches? Brian
Posted by noa on September 25, 2000, at 15:29:39
In reply to Re: ADULT TOURETTES, posted by Brianscott on September 24, 2000, at 16:29:24
no, sorry--did you do a search at pubmed?
Posted by caroline on September 27, 2000, at 15:39:46
In reply to ADULT TOURETTES, posted by Brianscott on September 21, 2000, at 20:25:21
I recently heard about a book called "Passing For Normal". It is the autobiography of Amy Wilensky, an adult (mid-to-late 20's, I think), with Tourettes. I am still trying to get hold of a copy myself, so I don't know whether she talks about drug therapies she's tried. I did however get the chance to read a few pages and I wonder whether it might be of interest to you anyway. I was impressed and intrigued by what I read.
Hope you're doing OK and getting some more useful responses about meds. Best wishes!
Caroline
This is the end of the thread.
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