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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 7 of 7. This is the beginning of the thread.
Posted by kerria on January 3, 2006, at 2:52:55
Hi. It's so hard to write anything, everything is so hard. i'm still on the same amount of pain meds, so thankful for the Dr who believed my pain was real and offered to help. i take 60mg oxycontin 3 x a day and breakthrough 5mg oxycodone. i also take diazapam because everything is too hard for me- have PTSD and DID. The pain comes back every 7 hrs, is so triggering. my sx are so worse now with the dissociative disorder- forgetting a lot with constant switching, i don't know what i'm doing, literally. Therapy isn't helping. It's hard to have support - h. is always angry with me about things i can't help. Marriage, work, finances, everything is in disaster.
i'm scheduled to have a nerve block in about three weeks, by a different dr in the same pain management group - the one i went to before- where the dr kept threatening me (not to treat pain) and finally was making me go through withdrawal from pain meds because i didn't have a diagnosis for my pain. Now i do- last Oct. i went to a pelvic pain specialist who is leading treatment now.Just checking in- not much has changed- nothing has changed with medication.
Anyone else have pudendal nerve problems? Any success with meds, surgery?
thanks for listening,
kerria
Posted by kerria on January 4, 2006, at 0:05:57
In reply to Still struggling with PNE, posted by kerria on January 3, 2006, at 2:52:55
i hate to post anything here - i'm having too hard a time - it's not a good time to be reminded how no one can possibly understand or identify with being in physical pain or else hate me because i'm taking pain meds..
every day is a struggle and when no one responds it puts me in a bad place.
Posted by zenhussy on January 4, 2006, at 0:53:35
In reply to Not worth the fighting inside, posted by kerria on January 4, 2006, at 0:05:57
kerria,
our skill set isn't that of folks who know meds inside and out thus our lack of posting to this meds board. iow......we don't know jack! ;)
we sent e-mail the other day your way.
with hope for relief for you,
__zh
Posted by Declan on January 4, 2006, at 1:48:56
In reply to Not worth the fighting inside, posted by kerria on January 4, 2006, at 0:05:57
Hey Sweetie, don't worry. People all the time have their posts ignored. I can identify with physical pain and there's no way (in the world) I'd hate you for taking pain meds.
It's not this board I find difficult; I have problems on Social.
Declan
Posted by Larry Hoover on January 4, 2006, at 5:17:39
In reply to Not worth the fighting inside, posted by kerria on January 4, 2006, at 0:05:57
> i hate to post anything here - i'm having too hard a time - it's not a good time to be reminded how no one can possibly understand or identify with being in physical pain or else hate me because i'm taking pain meds..
>
> every day is a struggle and when no one responds it puts me in a bad place.I totally understand. You asked about pudendal nerve neuropathy. Mine's the ulnar nerve. I take oxycontin and Percocet and nortriptyline and clonazepam and I'm adding in a drug that could get me 5-20 in your country, because I just can't take it any more. I've been between the rock and the hard place for so long I feel like a watermelon seed about to be launched. Not much of Lar going on.
Sorry, I thought you wanted to discuss the pudendal nerve. It's a pretty rare injury you have. Mine's a little bit more run of the mill.
Seriously, if you can get some relief from the nerve block, it can start reversing the neuropathy. It can start to fade. It can begin to break the vicious cycle. Besides that, if it works, it feels good for a while.
And, I don't remember.....did you mention Neurontin or Lyrica? Both drugs have the ability to interrupt the nerve cross-talk at the level of the spinal cord that is believed to maintain the neuropathic pain when no concurrent stimulus actually exists which could be triggering the pain sensation. Lyrica is supposed to be a better drug for two reasons. It more specifically hits the alpha-adrenergic delta-2 receptors (it's five in the morning and I haven't slept a wink, so nobody rag on me if I didn't get that detail perfect, please) that is supposed to be the bad guy in this feedback of pain. The other thing is Lyrica blood concentration is linear with dose. What that means is you can control the blood concentration much much better than with Neurontin.
Hang in there, ker. It's only a few days until you get that nerve block.
Lar
Posted by ed_uk on January 4, 2006, at 14:09:44
In reply to Still struggling with PNE, posted by kerria on January 3, 2006, at 2:52:55
Dear K
I think you need to start taking your OxyContin four times a day - every 6 hours. For many people, it simply doesn't last as long as it's supposed to. You should discuss this with your doc. At the moment, you're taking 60mg three times a day (total of 180mg per 24h). Why not try taking 40mg four times a day? (every 6 hours)
Ed x
Posted by alexandra_k on January 6, 2006, at 0:41:05
In reply to Still struggling with PNE, posted by kerria on January 3, 2006, at 2:52:55
there is a support forum for that available from this link:
i'm sorry you think people from here can't understand what it is like to feel pain
and i'm sorry you think people from here judge you for taking pain medication
This is the end of the thread.
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