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Dr. Bob is Robert Hsiung, MD,
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Posted by iris2 on June 25, 2005, at 0:57:52
In reply to Re: Incentives for meds and Amineptine » iris2, posted by ed_uk on June 23, 2005, at 13:36:37
Ed,
No. Thought about it but it ws at time I was not willing to try anything again.
Irene
Posted by iris2 on June 25, 2005, at 1:14:11
In reply to Re: Kat and everyone, posted by stresser on June 24, 2005, at 17:02:56
Stresser,
boy would it not be nice if this were a much more exact science. A doc can take two people brought up similarly at the amed age with the same diagnosis and symptoms and one it might be magic for the other poison. It is very archaic as most of meicine is. Take this or that particular poison and see if it provides for an objective feeling of not having some particular symptom (at least as far as depression is) forget what it could be doing to all the other systems in your body whether you feel that efect or not. Consider the rather simplistic example of your liver . HOw it all has to go through your (or most) liver and puts stress on it and after years could have damamging effects. And of course the others we call "side effects" whch they ae not. They ae effects of the cheicals we are putting into our bodies just not the effects we are wanting!!Oh well I am on my high horse . It is not like I never take medications. But I myself and try to persuade others to go the natural route first and try it for a whie as it can take longer. You I would thnk would feel this way as you are a physical instructor, something about as natural a healing in your body as one can get.
Irene
Posted by ed_uk on June 25, 2005, at 15:48:12
In reply to Re: Incentives for meds and Amineptine, posted by iris2 on June 25, 2005, at 0:57:52
Hi Irene,
Since 'normal' ADs seems to make your IC symptoms worse, I thought it might be useful to try a non-classical AD such as Lamictal.
Kind regards
~Ed
Posted by stresser on June 25, 2005, at 17:09:55
In reply to Re: Incentives for meds and Amineptine » iris2, posted by ed_uk on June 25, 2005, at 15:48:12
You would think I would feel that way. Not so. I'm just too tired of not having a so called "normal" life, that if medication is what is needed, then WE SHALL TAKE IT. I am certainly not opposed to medication, and never have been. It changes lives for the better, and it saves lives. It must be used correctly, and not abused, but sometimes it falls into the wrong hands, or gets out of control in the right hands. Never say "Never". (I'm a very open minded person) You might me suprised how many people involved in fitness, abuse controlled medications, and/or illegal steriods. It turns my stomach. -L
Posted by iris2 on June 26, 2005, at 13:59:57
In reply to Re: Incentives for meds and Amineptine » iris2, posted by ed_uk on June 25, 2005, at 15:48:12
> Since 'normal' ADs seems to make your IC symptoms worse, I thought it might be useful to try a non-classical AD such as Lamictal.
>
> Kind regards
>
> ~EdED,
Thanks for the advice. Right now I am beginning to see a naturopath so lets see how that goes first. Why is Lamactil so different? Even drugs like flexeril cause terrible flare ups?
irene
Posted by iris2 on June 26, 2005, at 14:05:26
In reply to Re: Incentives for meds and Amineptine, posted by stresser on June 25, 2005, at 17:09:55
HOnestly as much as I compain about my depression it might be funy to her me say this.
I think a lot of people in our times think that life is supposed to be all fun and there are not supposed to be hard times and if there are than by god you had better hurry up and take some med aor get some therapy because if things are not perfect almost all the time than something must be wrong.
Honestly I would be more than saticfied to be able to get up most mornings and just want to live or have some reason any at all to want to live. Forget about being perfectly thin or good looking or athletic etc. I just would be okay to be content with myself and willing to work on improvments so that I have something to live for!!!
Irene
Posted by ed_uk on June 26, 2005, at 15:38:03
In reply to Re: Incentives for meds and Amineptine, posted by iris2 on June 26, 2005, at 13:59:57
Hi Irene,
>Right now I am beginning to see a naturopath so lets see how that goes first.
I hope it helps :-)
>Why is Lamactil so different?
Well........I don't think it's got anything in common with 'normal' ADs. Come to think of it, I think it might be a weak serotonin reuptake inhibitor though.
Kind regards
~Ed
Posted by rainy on June 27, 2005, at 8:58:00
In reply to Re: Incentives for meds and Amineptine » iris2, posted by ed_uk on June 26, 2005, at 15:38:03
I don't know they "whys" of Lamictal. I do know that my pdoc was certain it would smooth my moods and ease my depression. It didn't as I recall because it made my hair fall out in handfulls and I got so upset about that it was hard to pay attention to the other aspects of my being. Things were also complicated by a recent, unwanted move to an unloved house in equatorial NJ heat, a grumpy husband (no wonder!) and no job. There were lots of things impinging on how I was "feeling."
We went out of town and I forgot the lamictal. I felt almost immediately physicially better and decided to continue to not take it since I had an up coming pdoc appointment. I couldn't believe that hair loss slowed, I felt more like myself despite the fact that our house remained cramped and I without life meaning--I had more energy and humor and I put those pills on a shelf. Forever.
But they do work for a lot of people.
rainy.
Posted by headachequeen on June 27, 2005, at 16:11:07
In reply to Re: Incentives for meds and Amineptine » iris2, posted by ed_uk on June 25, 2005, at 15:48:12
> Hi Irene,
>
> Since 'normal' ADs seems to make your IC symptoms worse, I thought it might be useful to try a non-classical AD such as Lamictal.
>
> Kind regards
>
> ~EdOh, brother!
I have been reading the recent posts and now I am really wondering about all this...
if Lamictal is an AD, why on earth would this neurologist suggest it might be an answer for epileptic seizures???Some days I want to stop the merry-go-round and get off to start again at a sensible pace...
I use many natural remedies and approaches to healing... after all, I am a Reiki practitioner and planning to become a Reiki master when I feel the time is right and I am ready for that step and I have been able to help others as well as myself using Reiki.
A fellow practioner, a Master actually, has also studied aromatherapy and many other natural approaches to healing as well as the negative aspects of certain aromas, oils, herbs, foods and so on...
following the information she has provided, I have removed certain foods and other 'natural' not chemical preparations from my life and found that it helps... staying away from that confounded juniper shrub that wanted to be a tree and is now eighteen feet high at the corner of the driveway helps a great deal LOL....
but I also realise that I cannot simply turn my back on conventional medicine; the alternative and conventional have to be used together...
thank heaven for a wonderful primary care physician who is leaving this area... and then what happens???at any rate, I will not know anything more about the lamictal for seizures until January so shall not worry about it, but I think back to last August and the sheer chaos that was my life following that 24-hour sleep-deprived eeg tele whatsis and then wonder about repeating the experience at the end of July...
I am really not looking forward to going through all that again...
nad what is the point when things can and likely will change by the time I see this chap in January...we are supposed to have such a great medical system in this country, but he wants everything to fit between the lines and cannot understand, as my reg doctor does and the other doctors who treat my weird combination of redhead symptoms, that not everyone fits in the lines..
some children are free spirits; others have not yet developed their fine motor skills enough to stay within the lines. Besides, it is always better to let a child express himself on a blank sheet of paper than try to make him colour the picture that you present in the colouring book...
I am the child who cannot stay within the lines...
and he does not want to understand that there is something that is not straightforward about this
nonsense.
So as of today, on my own dr's advice, it is back to the regular dosage of topomax, ditch the clobazam which makes me ill and groggy and sort of dopey, and back to taking control of my life...
I have not been taking the clobazam for quite a while anyway...I am also going to look into more reiki and alternative options to enhance the medications..
not to replace them....and then look forward to the mri and ct scan for my spine and leg...
does it ever end...
kat
Posted by ed_uk on June 27, 2005, at 18:48:17
In reply to Re: Incentives now Lamictal » ed_uk, posted by headachequeen on June 27, 2005, at 16:11:07
Hi Kat,
Lamictal (lamotrigine) is an anti-epileptic. It was designed to treat epilepsy. It was later discovered that it was a useful treatment for depression as well.
See........
http://www.rxlist.com/cgi/generic/lamotrigine_ids.htm
~Ed
Posted by headachequeen on June 27, 2005, at 20:03:39
In reply to Re: Incentives now Lamictal » headachequeen, posted by ed_uk on June 27, 2005, at 18:48:17
> Hi Kat,
>
> Lamictal (lamotrigine) is an anti-epileptic. It was designed to treat epilepsy. It was later discovered that it was a useful treatment for depression as well.
>
> See........
>
> http://www.rxlist.com/cgi/generic/lamotrigine_ids.htm
>
> ~EdOh... I see... thank you, Ed, for the explanation and information... clear and easy to understand.
I have said it so often, but this is where I find so much more help than in the offices of the specialists.Now that Tegretol is out of my life I will be able to remember what I learn here without having to go back and read and re-read it a thousand times! So much simpler this way.
kat
Posted by ed_uk on June 28, 2005, at 2:36:41
In reply to Re: Incentives now Lamictal, posted by headachequeen on June 27, 2005, at 20:03:39
>Now that Tegretol is out of my life I will be able to remember what I learn here without having to go back and read and re-read it a thousand times!
:-)
~Ed
Posted by michelle1 on July 12, 2005, at 0:27:58
In reply to topomax, posted by Ellen Brodie on April 19, 1999, at 15:58:40
Just getting started 25mg of topomax yesterday, with lithium increase 450mg and 1/2 tablet and seroquel 50mg. slept well actually woke up later than usual however think I went sleep later though not certain I fade in and out at night who is to tell. Today increased to 50mg of topomax I think I increased to soon doctor said go slow wants me to get up to 300 to 400. right arm feeling little pain. don't know
Posted by rainy on July 12, 2005, at 8:45:26
In reply to Re: topomax, posted by michelle1 on July 12, 2005, at 0:27:58
Hi, Michelle, welcome to the topamax (and other stuff) board. You'll want to take it very easy as you increase your dose of this mad med, otherwise more than your arm will hurt. Most of us have been told by our clinicians or discovered that we need to increase no faster than 25 mgs every two or three weeks. That seems awfully slow, but to do it any faster is to invite cognitive troubles, lots of tingling in hands, arms, face, with me the crabbies, stuff you neither want nor need. Your doctor may suggest going up 25 mgs per week--too fast. Go Slow. Those of us who are taking Topamax, and I'm on 400 mgs, can't chant that loud enough. That's your mantra. Go Slow.
also, good luck and always ask a bunch of questions.
rainy
Posted by michelle1 on July 12, 2005, at 12:39:25
In reply to Re: topomax » michelle1, posted by rainy on July 12, 2005, at 8:45:26
How do I get to this message board without having to leave the website i keep having to leave website dr. dob then type in topomax. and then scroll down and find dr. bob? Unsure what I'm doing wrong new to this website. Thankyou for useful infor. that seems to be key going slowly. I hope it works dr. says I'm borderline to diabetic great one more illness just what i need , i need to seriuosly need to loose the weight.
Posted by Dr. Bob on July 12, 2005, at 19:30:54
In reply to Re: topomax, posted by michelle1 on July 12, 2005, at 12:39:25
> How do I get to this message board without having to leave the website
Try bookmarking this page:
http://www.dr-bob.org/babble/babble.html
Or without frames:
Hope that helps!
Bob
Posted by headachequeen on July 12, 2005, at 23:05:23
In reply to Re: topomax, posted by michelle1 on July 12, 2005, at 0:27:58
> Just getting started 25mg of topomax yesterday, with lithium increase 450mg and 1/2 tablet and seroquel 50mg. slept well actually woke up later than usual however think I went sleep later though not certain I fade in and out at night who is to tell. Today increased to 50mg of topomax I think I increased to soon doctor said go slow wants me to get up to 300 to 400. right arm feeling little pain. don't know
You certainly did increase the dosage too soon...
it is important to titre up slowly, no faster than in two week increments...
half the total dosage in evening dosages, then starting in the morning to add the rest of the total dosages...for instance if the total dosage is to be 400 mg, work up slowly to 200 mg in the evening, then start in the morning to work up to 200 mg...
this way you avoid the risk of side effects...
kat
Posted by stresser on July 13, 2005, at 7:41:16
In reply to Re: topomax, posted by michelle1 on July 12, 2005, at 0:27:58
I lost the message board also! Go figure? Can I blame the topomax? I thought all of you weren't writing in, and when I saw that I had some posts via my e-mail, I found it again! Duh?
Have I missed much?
I'm still on the same dosage, and M is also coninueing along on the same.Michelle, are you increasing really fast? You need to listen to Kat and Rainy, because they are the "Queens" of Topomax, and believe me(!!!!) they do know what they are talking about. I followed their advice, and am thankful for it. My daughter and I had no problems at all. Many people have trouble, and my doctor told us to titrate up faster than we did. (Thanks to the two of them) You are lucky to have found this board. Keep writing in and with questions about anything, because we are here to help you. You are here to help us! -L
Posted by michelle1 on July 13, 2005, at 12:11:34
In reply to Re: topomax, posted by michelle1 on July 12, 2005, at 0:27:58
okay last night ate alot took my meds 5o mgs of topomax 450 and 1/2 of lithium and 5o mg of seroquel and ate 2 sandwiches chicken I grilled was great with nice wedge of onion and some miracle whip can't forget that and two fresh individually wrapped cooked there new at the market. can you tell I have this love affair with food? Still felt that sensation in my arm this mornin around 6am so I heeded yout advice did not increase when should I increase possibly? I've got to stop eating like this maybe should I take one during the day as you somewhat suuggested?
Posted by headachequeen on July 13, 2005, at 15:34:46
In reply to Re: topomax, posted by michelle1 on July 13, 2005, at 12:11:34
> okay last night ate alot took my meds 5o mgs of topomax 450 and 1/2 of lithium and 5o mg of seroquel and ate 2 sandwiches chicken I grilled was great with nice wedge of onion and some miracle whip can't forget that and two fresh individually wrapped cooked there new at the market. can you tell I have this love affair with food? Still felt that sensation in my arm this mornin around 6am so I heeded yout advice did not increase when should I increase possibly? I've got to stop eating like this maybe should I take one during the day as you somewhat suuggested?
You are not going to like what I am going to say, but it comes from personal experience, research, the experiences of others on this board, and from the advice of doctors and the technicians who have helped in their research with this medication, and other learned sources... and it is meant to help you, so, please, bear with me and take it as it is meant, kindly <s>
You have to back up right now...
go back to the 25 mg of topomax and stay at 25 mg for at least, repeat AT LEAST, two weeks... then, when your body tells you it is comfortable with this new invasion of chemicals, and only then, add the next 25mg to the dosage, and do not add any more of it for at least another two weeks...
some people are unable to increase the dosasge for three, even four weeks...
One thing that happens, aside from the other drastic side effects like hair loss, vision problems and cognitive problems, all of which usually fade with time, is that the topomax does not have any effect on weight loss if you jump right into the deep end. Your body needs time to adjust slowly....
sort of like learning to walk... first we learn to turn over, then we learn to sit up, then we crawl, then we stand, then we take tentative steps, hanging on to things, then we walk unaided a few steps at a time, much later we run....
so with topomax if we want it to be a safe and successful venture....
we also don't suddenly cut it back if we want it to go on doing its job....
I have the interesting fate of working with the neurologist who uncovered the weight loss connection... he did a lot of research into that angle, but has no connection with the migraine part...
when I quit using the tegretol he cut back the topomax as the tegretol as a member of this discussion group had explained to me cuts the efficacy of the topomax...
immediately migraines began again and the seizure control diminished. My own doctor told me to start taking the original dosage of topomax again and dump the clobazam and we are on top of the world...
only one seizure and a minor one at that since I went back to my 600 mg and no headaches...oh, and Stresser and Rainy, I have cancelled the 24-hour-sleep-deprived eeg with a tentative re-scheduling for November (just in case I need the neurologist for an emergency LOL)
I remember last August and early fall and the chaos that followed the sleep-deprived tests and I am not going through that again if I can help it...
topomax and reiki and iet and I are handling this just fine!!!!!!meanwhile, michelle1, go back to the 25 mg for a while.. take it slowly and remember that you can slow down your appetite by eating an ounce or two of almonds or cashews or pecans before a meal...
that helps too...
and I might add, since I dumped the clobazam I have lost another 10-12 pounds... lost it in about a week...
love these drugs that pack on the pounds!!!
I do not need them.... and to add to the joy of the stuff, well the name does make me chuckle, keep expecting Batman to turn up at any moment, it has this nauseating effect... as if I needed that !so I shall stick to the topomax and enjoy life...
I don't skydive or hangglide... but I have started back to nature photography and tracking in the great out of doors and doing agility full tilt and have not had a seizure or even a fugue episode...
so much for the dangers of side effects to topomax... it takes the risk out of living with epilepsy as far as I am concerned...
and beats migraine... and helped me lose all the weight the other drugs helped me gain...
this is great stuff!!!
as long as one approaches it carefully and with respect.
Here endeth the sermon
kat
Posted by Rainy on July 14, 2005, at 11:32:35
In reply to Re: topomax » michelle1, posted by headachequeen on July 13, 2005, at 15:34:46
Not to nag or anything, Michelle, but Kat knows what she's talking about and so do I (did I say brag)? Go back, go back to 25 mgs, and don't increase for two weeks and maybe not then!
Howcome you're taking the Topamax, anyway? If it's for weight loss, it may not work for you. I only lost ten pounds and that might be because it was summertime and I was living on ice water. Food is good, but Topamax isn't the magic bean for losing weight. Almonds are a good idea.
Kat mentioned taking an increase in the morning when you get to a certain point--for example, you could take 25 mgs in the evening and 25 in the morning to increase to 50 when it's time. Not Now.
Kat, congratulations on getting off the clozabam and back to photography, as well as taking charge of your medical life (in this arena). Emergency appointments indeed. This time last year you were not a happy camper.
I'm a week into new bottles of serzone (generic) and Topamax and have to be walking the bottom rings of hell--there's a definite difference in my mood and behavior since I opened those meds. Crabby and depressed and snappish and sullen and annoyed and uncharming. Bipolar II is showing its little face. It always does in the summer but I can usually "be nice." There's something different about the pills.
I am learning Russian, which is good.rainy
Posted by michelle1 on July 14, 2005, at 12:25:43
In reply to Re: topomax » headachequeen, posted by Rainy on July 14, 2005, at 11:32:35
I take it for mood swings i am bi polar , i also have very bad migraine headaches and the the doctor suspects i am a binge eater. i have never been this large in my life i'm not a binge eater i'm a pill eater. doc ran some blood tests showed possible borderline diabetic so she really wants to control my weight in addition to everything else. new doctor who actually cares. really good every one else just loaded me up sent me on my way ignoring my concerns of weight gain which contributes to depression and everything else. self image is alot to me. how I feel about me I feel like a complete failure other than my two beautiful children.
Posted by celticmom on July 14, 2005, at 14:44:31
In reply to Re: topomax, posted by michelle1 on July 12, 2005, at 0:27:58
Michelle, not sure if your doc mentioned this (I would hope he/she would have if it applies) but Topamax pretty much null and voids the birth controll pill. My sister had her first child because of Topomax. :D
Posted by michelle1 on July 15, 2005, at 21:23:39
In reply to Re: topomax, posted by celticmom on July 14, 2005, at 14:44:31
that's okay I had a hysterectomy no more whammies for me.
Posted by stresser on July 16, 2005, at 10:40:50
In reply to Re: topomax, posted by michelle1 on July 14, 2005, at 12:25:43
Michelle- Are you taking any anti-depressants? We can't have you feeling like a complete failure, because I'm sure you aren't. You have to get out of this depressed phase, and stop feeling like that so things will get better. Do you exercise on a regular basis? I know how difficult it is to control the binge eating, I love to eat myself, and do just that as well. Stick with the topomax, believe me!! Things will be better in the future, but it takes time, my daughter and I are living proof of it. I wouldn't have believed it myself one year ago, and still am holding my breath as I type this.
Everyone else seems to be doing better these days! I don't get on here as much because of baseball, but that will end in a few weeks. Still at 200mgs of topomax, and things seem to be just fine.
I still have my nasty moments! I miss hearing from you ----Kat and Rainy!!-L
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Dr. Bob is Robert Hsiung, MD,
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