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Dr. Bob is Robert Hsiung, MD,
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Posted by Kacy on August 5, 2003, at 18:31:26
In reply to STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 5, 2003, at 15:10:14
I wish I knew what to tell you. Can you call your doctor? I think it's time to call family and friends if there are any nearby and say you need some help. Are you spending all your time alone?
No one is going to try to give you drugs.
Are you eating regularly? Some balanced meals? What are you eating?
Posted by jay on August 6, 2003, at 0:21:36
In reply to STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 5, 2003, at 15:10:14
Hi:
I know it feels like "hell" now and you are in a lot of pain. I am deeply sorry, as I remember those moments clearly for myself. (And that isn't that long ago!) I have a couple of suggestions based on what you have said so far. First, it seems like you have a hard time with Remeron and Reboxatine. Both of those meds work quite strongly on the brain chemical norepinephrine. After a recent psychiatric evaluation by a competent clinician, this person mentioned to me that some people have a very difficult time with medications that strongly affect norepinephrine. Effexor was the tough one for me, and Remeron and Reboxatine may be too difficult for you.
So, you may want to ask about a couple of things. One being switching to an SSRI which is more selective on serotonin. I have noticed many people with anxiety having a tough time with Paxil, as I did also, and from what I read it has some strong anti-cholinergic and norepinephrine-reuptake inhibition. Celexa is one of the more serotonin-selective meds, and you may want to consider this with possibly one of a smaller dose of Remeron or Reboxatine. But, I'd say a benzodiazepine is an excellent choice along with Celexa. If you find your anxiety very chronic and acute, along with those two meds, either a mood stabilizer like Neurontin or a small dose of an atypical antipsychotic may help. (Risperdal and Zyprexa seem to be the most popular choices, but sometimes folks have a hard time tolerating one or the other.) Also, I find this odd, but I absolutely cannot tolerate Paxil or Zoloft, but am fine with Prozac. (It took a bit of adjustment, though.)
Most of all, and this is something surprisingly that many of us don't do, and that is make sure to tell your doctor of *everything* you are feeling. I found writing it down to be of great help. Sometimes I think we want to 'please' our doctors with positive news, and we shy away from the more horrible truth. One med that will really help *right away* is benzos, so ask your doctor, and if you don't feel you are getting the best treatment, you have every right to go to another doctor.
Please hold on tight...for it may be awhile before you hit the 'right' combo of treatment. I am also going to be starting talk therapy within a week or so, and again if you are comfortable with that, ask your doctor about it.
I hope the best for you...and please keep posting questions, for we are all here to support each other.Best wishes,
Jay
Posted by HenryO on August 6, 2003, at 2:22:37
In reply to STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 5, 2003, at 15:10:14
I found reboxatine to be a nasty buzz, physically and mentally. Maybe you ought to go to a hospital for a check. It is not good to be so intensly distressed. I mean that as support, sometimes it a helpful thing to have someone say you need some serious immediate attention. We sometimes don't think we're that bad. I hope you experience some relief soon.
Posted by daizy on August 6, 2003, at 4:53:32
In reply to STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 5, 2003, at 15:10:14
crazychickuk, if SSRI's arent working there are others you can be on, unless you just havent given them enough time to work, this could be the case. I dont think your going mad, as may people on here told me when I had BAD anxiety, you wouldnt know if you were mad and you wouldnt have any control, I know it might seem like you dont, but you do. You have control over your actions and your thoughts, so try the best you can to overcome your panic and anxiety. There are a lot of good books available to help with anxiety and panic. try searching amazon? Good luck!
> UPDATE: i started reboxatine.... made me way to high... all these flashbacks of being on extasy came flooding back as i was high.. and paranoia then kicked in that someone had spiked me.. even though they didnt.... doctor gave me remeron 15mg to take 3 weeks ago, ive been taking it BUT feel no better 3 weeks later.. i am suffering with paranoia, brain fog and depression o and lets not foget the panick that goes with it.. i am at my witts end.. tryed every ssri' snri makes me to manic and remeron puts me to sleep etc.. but ant helping me no other way.. what am i? plse plse i am lost in my own little world. i am going fing crazy..
> paranoid someone wants to spike me somehow.
> brain fog to the point i dont recognize myself and my head feels weird talking,
> depression to the point i am crying and thinking how shall i kill myself,
> anxiety to the point of depression,
> panicking over littlest things,
> obsessing, have to empty the kettle all the time, wont drink in other peoples houses, wont leave my drink unatented even when no one is about in my own home,
> get to high and can not slow down, then paranoia kicks in, my bottom lip even trembles.... ahhhhhhhhhh i am sick of this.. what have i got?
Posted by jaby on August 6, 2003, at 10:04:29
In reply to STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 5, 2003, at 15:10:14
Although it wouldn't be a first line med, lithium might be an excellent choice-works great for me
Posted by crazychickuk on August 6, 2003, at 16:52:45
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by jaby on August 6, 2003, at 10:04:29
Thankyou al so very very very VERY much for all your help and advice, i can not find the words to tell you how much this means to me, i went to the doctors today and he told me to stick with the remeron for 2 weeks at 15mg then raise the dose to 30mg which i will do. I asked about lithium and he told me that would be the last resort etc etc.. Then he said to me he refered me back to anxiety managment groups, well he refered me to my mental health center and they discuss me etc, and they have said my best thing would be to go back on the anxiety managment groups, where a few people get together with phsycologists and talk and help eachother, BUT i already been to 3 groups before,? NON help, it has gone way past panick for me more like anxiety/skitso(well feels as if) and brain fog... i meantioned to him about zyprexa and he said they only give them to people with advanced signs of skitsophrenia, and he gave that to me it could start skitsophrenia up in me in the futere, he said that remeron helps with the negative thoughts i have been experiencing, (when i am going to sleep i here a mans voice say just one word thats it) and he also i asked about klon and he didnt have a clue what that was, (i am in the uk) it is called clonzipam here, he said he wouldnt give it to me because it is a benzo and i had a bad reaction with valuim in the past, ( it just didnt work for me made me to depressed, and after taking upto 20mg of it IT stopped working for my anxiety), so basically he said to me to stick with remeron for 2 weeks on 15mg then raise to 30mg from then.. what will this change? and i will go back see him 3 weeks later..... so i will just try and hang in there till then :( Thanx again for all your support, please keep posting to me, you are my only freinds :)
Posted by daizy on August 6, 2003, at 18:09:59
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 6, 2003, at 16:52:45
Ask about TCA's next time!
Posted by Kacy on August 7, 2003, at 8:46:19
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 6, 2003, at 16:52:45
What it might change, Cr.ck.uk,. is your symptoms. I don't know anything about Remeron, but side affects when starting a new drug are the norm. If we all quit before the requisite time it takes for them to start passing and for the benefits to start, then we'll never get benefits.
It takes time to find out if a drug works. I went four months on Effexor before I realized any gain. During that time I had a lot of side effects. I wanted to quit, too. Every month I was getting a new side effect as others were dropping away. It took six months before I could say "yes, this is a benefit and I can live with the side effects that remain." And all that was for a drug that didn't even address my main issues. I couldn't get him to try any others for nine months.
You will never know what drug will work for you if you don't ride out the initial phases. Sadly, we all have to do that over and over. Waiting while suffering is hard, and then you have to go through increases in dosage just to see if the real issue is how much of the drug you need.
Maybe others with experience with that drug can say if those effects passed with that drug, or post here and tell you that those effects were there with similar drugs and that they did lessen later on.
Anyone?
Posted by crazychickuk on August 7, 2003, at 14:17:56
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » crazychickuk, posted by daizy on August 6, 2003, at 18:09:59
Been on all tca's thanx.. didnt like them.. what is doing my head in is the brain fog, paranoia and the panick/anxiety.. still suffering 3 weeks after starting the remeron... :(
Posted by daizy on August 7, 2003, at 14:59:12
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 7, 2003, at 14:17:56
Shame! There are still more meds you could try tho? Just curious what part of UK you from? Do you go private? Only because I know that sometimes private docs are more open to suggestions!!
> Been on all tca's thanx.. didnt like them.. what is doing my head in is the brain fog, paranoia and the panick/anxiety.. still suffering 3 weeks after starting the remeron... :(
Posted by crazychickuk on August 7, 2003, at 15:03:56
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » crazychickuk, posted by daizy on August 7, 2003, at 14:59:12
Wales i am from in the uk love, i can not afford to go private i am under the nhs..
Posted by daizy on August 8, 2003, at 7:10:34
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 7, 2003, at 15:03:56
I dont go private either! Im assuming that somewhere near you, there should be some sort of drop in center that may be able to help, looking in the phone book you might find one?
> Wales i am from in the uk love, i can not afford to go private i am under the nhs..
Posted by crazychickuk on August 8, 2003, at 9:03:05
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by daizy on August 8, 2003, at 7:10:34
I have been refered to one.. waiting for an appointment to see the phsyciatrist.
Posted by daizy on August 8, 2003, at 9:14:44
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 8, 2003, at 9:03:05
Well thats a good start! hows the anxiety lately? Do you get panic attacks? I used to get them, but with time and the right meds, they WILL get better. Have you seen a psychiatrist before? Hopefully you will get put on the right meds for you. What meds have you tried? I feel for you, Ive been in the exact same situation you have been in. Keep posting, hope it goes well!
> I have been refered to one.. waiting for an appointment to see the phsyciatrist.
Posted by crazychickuk on August 8, 2003, at 14:50:26
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » crazychickuk, posted by daizy on August 8, 2003, at 9:14:44
Well i get it all really, i can be fine one min then suddenly put of no where feel all funny, like i been taking drugs or something.. i get flashbacks of my past on drugs.. (4 yrs ago) anxiety is very high, i get ve ry anxious and a high feeling, i have been on all the ssris there are in the uk and snri's they all made me to manic, my hrt was constantly racing, trylics just made me to panicky, i kept getting panicky when i was t aking them even at night, diazipam stopped working for me for some reason as my mind is so overwhelming and remeron seems to be ok for now, no bad side affects this is the longest i have stuck to a med for, as i said i had to stop the rest, no good in saying you have to give meds a chance to work i had to stop them because of my hrt rate on doctors orders ofcourse, i seen the phsyciatrist before and she was the one who gave me the zoloft, never seen her again she just refered me straight for anxiety managment which i have been to 3 times now.... they just teach you to relax etc... BUT that dont help with the funny feeling i experience, a constant daze, dp, dr, BRAIN FOG.. my doc re refered me back to the phsyciatrist again as he isnt happy with they was they treat me there, they just signed me off withought me knowing really.. i was even suicidal.. now i have been on remeron for 3 weeks on 15 mg, have to stay on 15mg for another 2 weeks then i have to start on 30mg for a week then go back to my doctors, they dont knock me out they just relax me for a bit.. then i go to bed, i can still awake in the middle of the night though sometimes, BUT i cant get out of bed in the morning :( ummmmmmm just this brain fog.... and i fear i am loosing my mind, i know you can say U R NOT LOOSING YOUR MIND BUT it does feel as if i am.. i am so obsessed with my health, so obsessed about people spiking me with drugs, i can not be araond alot of people as i get all panicky that funny feeling i get in my head.. i have constant brain fog... and racing thoughts.. i even hear a mans voice just say one thing as i am going to sleep and i hear my mind talking also.. the voice of a man saying just one thing is like ''the job is done'' one night ''what an earth did u do that for '' is another, i can rememrber when i was younger 15 i used to take daily naps and i would go deeper and deeper into a sleep and couldnt wake myself up i would loose my breath and i would hear alsorts of voices then... then it happened again when i was pregnant NOW it is happenig again but this time it is also happeneing at night when i go to bed? SO i am just gonna have to wait till i see the phsyiciatrist i just hope she dont start me on any antiphsicotics (sry spelling)
Posted by daizy on August 8, 2003, at 15:23:59
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 8, 2003, at 14:50:26
"no good in saying you have to give meds a chance to work i had to stop them because of my hrt rate on doctors orders ofcourse,"
"i know you can say U R NOT LOOSING YOUR MIND BUT it does feel as if i am.."
Anything I have said was meant to be taken as friendly advise, Im sorry if it didnt come across that way, but I have been in such a similar position to you, check my old posts if you dont think I know alittle of how you feel!!! I wont give you anymore advise, as I dont want you to take me the wrong way, all I can say is I wish you good luck and hope you get better soon. If you want to ask me any questions that fine too!
Posted by crazychickuk on August 8, 2003, at 15:30:22
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » crazychickuk, posted by daizy on August 8, 2003, at 15:23:59
HEY i didnt mean anything bad about that,, i said those things as thats all people say these days, i have been posting in healthboards too and all they say is give meds a chance etc... plse plse dont be affended i am sorry..
Posted by daizy on August 9, 2003, at 8:42:12
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » crazychickuk, posted by daizy on August 8, 2003, at 15:23:59
Dont be sorry! I Know when my anxiety was bad, I just wanted to be better straight away, the thought of having to wait weeks made me feel even more worried and anxious, and I know that me telling you your not going mad, doesnt count for much, when you actually feel you are! I still feel like Im going mad sometimes, I still get anxious, I get anxious about being anxious!!!
Do you have someone to talk to who understands how you feel?
Posted by crazychickuk on August 9, 2003, at 14:21:09
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » daizy, posted by daizy on August 9, 2003, at 8:42:12
I have nobody that supports me emoitanly no... you?
Posted by nerd on August 10, 2003, at 23:19:05
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by daizy on August 6, 2003, at 4:53:32
Hey Crazychick, I'm really sorry to hear this. I ask you all the time, but you never give me details. If I could do anything for you, trust me, I would. I have cinsidered you to be a friend for past months that we have known each other. I really really wish there was something I can do for you. I'm sorry. Please keep me posted.
Posted by crazychickuk on August 11, 2003, at 8:29:28
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by nerd on August 10, 2003, at 23:19:05
o thanx
Posted by nerd on August 12, 2003, at 0:39:03
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by crazychickuk on August 11, 2003, at 8:29:28
You're welcome Crazychick. Love ya girly!
Posted by crazychickuk on August 12, 2003, at 13:24:59
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by nerd on August 12, 2003, at 0:39:03
:)
Posted by becksA on August 12, 2003, at 13:39:37
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!! » crazychickuk, posted by daizy on August 7, 2003, at 14:59:12
I just moved back to the states from living in ENgland for 7 years...I used a good pdoc near leatherhead....at a place called the learning assessment center. check it out if you are around london, they prescribe whatever you talk to them about really...not strict at all.
Posted by crazychickuk on August 12, 2003, at 13:42:53
In reply to Re: STILL SUFFERING BADLY !!!!!!!!!!!!!!!!!!!!!, posted by becksA on August 12, 2003, at 13:39:37
i am in wales, and i wouldnt take just anything, i will only try meds from my doctor, BUT if i hear some good stuff about certain meds then my doctor will try me on them.
This is the end of the thread.
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