Psycho-Babble Medication Thread 229051

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Topamax - Heaven or Hell?

Posted by Vixen on May 25, 2003, at 15:04:13

Hi everyone,
I just started taking topamax about two and a half weeks ago, 25 in the morn, 25 in the evening, and this is the most bizarre drug I have ever taken. I have fibromyalgia, chronic fatigue syndrome, and horrific migraines. I have tried everything, and this, even tho new in my system, got me through my migraine and I haven't had a major flare up with the fibro. Problem is there are so many side effects. First thing I noticed is that I have zero taste for food, except when I wake up in the middle of the night (I find plates of food I have consumed).And I wake up a lot in the night, my mind buzzing, my body dead. That is if I can even fall asleep. I have lost a ton of weight, and am drinking more water than anyone can throw at me. I thought I knew what water retention was before, but I had no clue until now. My hair seems to be slightly falling out, and I am in a blur half the time. Oh, and my knee joints seem to go numb or tingle every once in a while. The first week was a nightmare. It seems to be edging off a little, but what I want to know is if anyone experiences anything of the sort, and do the side effects go away, or do I have to choose between being spacey, awake and thin or pain? THanks so much.......Vixen

 

Re: Topamax - Heaven or Hell?

Posted by missliz on May 26, 2003, at 1:14:34

In reply to Topamax - Heaven or Hell?, posted by Vixen on May 25, 2003, at 15:04:13

Topomax is either or. it's great for some people, and a disaster for others. I was on it for mood stabilization, and it made me actively psychotic.
For pain treatment there are other options in the AED group. I have hidiously paifull arthritis in the back knees and ankles, and though I take Trileptal for mood swings it's been a miracle for my pain. It's widely used for chronic pain. I also tended to get horrible myalgias in the trapezious(typical of anxiety) and they've stopped.
So try something else if you're that miserable. Topomax is a weird drug, and plenty of other people can't take it either.

missliz


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