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Dr. Bob is Robert Hsiung, MD,
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Posted by Jiggitykid on September 1, 2004, at 6:30:57
In reply to Re: Effexor withdrawal symptoms!, posted by Anandia on August 31, 2004, at 23:16:57
You are describing what I experienced, too. Thankfully, I found this board and discovered that I wasn't completely crazy ;-). Most doctors don't seem to know (and some don't believe) that there is significant physical withdrawal from effexor, no matter the dosage level. I quit cold-turkey at 250 mg. I was "fit to be tied" for two weeks, and not normal for another month. It took a while to get completely out of my system. That was back before Thanksgiving '03. I am "normal" now. I was still having troubles at Christmas, but nothing near what I was dealing with for the first 2 weeks to a month after cessation.
The drug company MUST be held responsible for this. They are ruining lives with this. I know, I know - there are those among us who say that effexor has saved their lives. My caution is that it will NOT last, and quitting the drug is inevitable. I urge them to come back here for support during their withdrawal - they won't get "I told you so," from us, because we have all been there.
Hang in there - take care driving at night. If you have started having visual problems, they might clear up after a while. The "zaps" will go away, but even now, nine months after quitting effexor, I get them in my sleep. I wake up, "zapping," and I never, ever did that before.
Take care of yourself. If you think that there might be a heart-related problem as well, then by all means, see a cardiologist to rule out any suspicions. It does get better!!
> I've been trying to describe to my doctors the weird sensation I have been experiencing since going off of Effexor abruptly a few weeks ago. It's like my arrythmia, only it "pulsates" up my neck into my face/cheeks and simultaneously down my arms to the palms of my hands. The OB who gave me the samples said it wasn't due to withdrawal and that I should see my cardiologist. I was doing some research tonight and saw a list of withdrawal symptoms that included: sensory disturbances (including shock-like electrical sensations)!!! That is what I've been trying to describe! I've also been seriously fatigued, major headaches, anxious and short-tempered, night sweats, nightmares or just bizarre dreams, and gastrologic nastiness (won't go into any more detail there :P). This drug is strange, I've never had withdrawal symptoms like this from ANYTHING I've ever taken. I have also been having strong suicidal ideation but haven't mentioned it to anyone for a variety of reasons, the least of which is because I haven't got health insurance at the moment. The doc who gave me the Effexor (Oh, I was on 75mg XR) gave it to me free - a bunch of samples. I couldn't afford the $120 price tag for the prescription he wrote for me.
Posted by kananee on September 1, 2004, at 10:06:25
In reply to Re: Effexor withdrawal symptoms!, posted by Anandia on August 31, 2004, at 23:16:57
For all us (most of us) who have been confronted by the skepticism of our pysdocs, GPs and therapists about the hideous effects of coming off Effexor, here's a bit of irony:
"During marketing of other SSRIs and SNRIs (serotonin and norepinephrine reuptake inhibitors), there have been spontaneous reports of adverse events occurring upon discontinuation of these drugs, particularly when abrupt, including the following: dysphoric mood, irritability, agitation, dizziness, sensory disturbances (e.g., paresthesias such as electric shock sensations), anxiety, confusion, headache, lethargy, emotional lability, insomnia, hypomania, tinnitus, and seizures. Although these events are generally self-limiting, some have been reported to be severe."
This is excerpted from official literature published by Lilly on 8/3/04. Why? Because Lilly just got FDA approval for its own Effexor-type drug, Cymbalta. Supposedly as effective as Effexor for MDD but without the horrible side effects.
See http://www.cymbalta.com/?ccd=cymbalta306 for more information. The excerpt is from an 18-page .pdf file on the Cymbalta site.
Posted by boatsie on September 1, 2004, at 14:57:44
In reply to Re: Effexor withdrawal symptoms! » Anandia, posted by Jiggitykid on September 1, 2004, at 6:30:57
the slow withdrawal....... from hell.
okay, fellow board members. I must be the slowest case here and as i continue to check in i keep thinking that maybe my depression is just the worst of the lot.
I started down from 300 XR in June and am now at 185.5....
Even with this slow withdrawal .... I am so exhuasted, always fighting a feeling of not being safe, som ekind of terror behind it all. just a horrid feeling.
my doctor told me that below 225, the norepheneprhine is no longer active. that's why i have the rushing in my chest, the lethargy, the aches and pains.I tried for one week at 150 but it was so dibilating. I keep waiting for an evening off of where I am right now so I can further decrease. I am seeing a naturopath who is giving me herbs and flower essences and energy healing. she is convinced i can succeed.
one of the things i keep hearing in this board is that you need support. i just don't have much of it. I feel very hopeless right now.
Posted by FaithT on September 1, 2004, at 15:20:42
In reply to Re: Effexor withdrawal symptoms!, posted by boatsie on September 1, 2004, at 14:57:44
Dear Boatsie~
I'm so sorry that you're having such a rough time. I did manage to get off of this med., as I posted before..but it's really hard. I am also dealing with the fear that has come back in regard to my diagnosis of Melanoma in July of 2002, and the fear of recurrence or metastisis,which haunts me. It's very tempting to go back on Effexor, to lessen the fear, but I just can't do it..not after what I went through with the withdrawl.
So, you're not alone in your fight..It's a daily battle.
Hugs, Faith~
Posted by Jiggitykid on September 1, 2004, at 15:23:01
In reply to Re: Effexor withdrawal symptoms!, posted by boatsie on September 1, 2004, at 14:57:44
I'm so, so sorry that you are going through this and that you feel alone. I may not be there to hold your hand and tell you that you are loved, but I'm there in spirit. You are in my prayers, boatsie. I've seen your name here for quite a while, and I'm incredibly sorry that this is taking so long for you! I'm convinced you can do it, too. As for your depression, the Effexor made my depression WORSE, while taking it and while withdrawing. Remember, you were on a high dose and are going down gradually. I was at 250 and quit, so I hit the wall instantly. There were times I was scared *&$#less, but I made it.
Please continue to post here. Whether you get immediate responses or not, know that you are cared for and prayed for. I'm sorry that we can't do more. Hang in there!!!!!
> the slow withdrawal....... from hell.
>
> okay, fellow board members. I must be the slowest case here and as i continue to check in i keep thinking that maybe my depression is just the worst of the lot.
> I started down from 300 XR in June and am now at 185.5....
> Even with this slow withdrawal .... I am so exhuasted, always fighting a feeling of not being safe, som ekind of terror behind it all. just a horrid feeling.
> my doctor told me that below 225, the norepheneprhine is no longer active. that's why i have the rushing in my chest, the lethargy, the aches and pains.
>
> I tried for one week at 150 but it was so dibilating. I keep waiting for an evening off of where I am right now so I can further decrease. I am seeing a naturopath who is giving me herbs and flower essences and energy healing. she is convinced i can succeed.
> one of the things i keep hearing in this board is that you need support. i just don't have much of it. I feel very hopeless right now.
Posted by Jiggitykid on September 1, 2004, at 15:44:32
In reply to Re: Effexor withdrawal symptoms!, posted by FaithT on September 1, 2004, at 15:20:42
Hi Faith,
I imagine you have, but just in case, I thought I'd throw it out there. Have you tried Christian counseling to lessen your fear? I suggest going to a licensed counselor and not a pastor. You need someone who has the proper training and compassion to help you deal with the fear. I hope this doesn't sound preachy, but you will only be free from the fear when you deal with it properly. Medicating it is just putting it off and actually letting it grow larger. Your fear is totally understandable, but the life that you have right now is being taken away not by the cancer, but by the fear of the cancer, and that's not much of a life. You deserve to live each day as a gift and not in fear. I know an excellent counselor in my area, but I have no idea where you are :-). I can recommend a website to help you find someone in your area. It is http://www.aapc.org/ , which is the website for the American Association of Pastoral Counselors.
Know that you are loved and in my prayers. Please take care of yourself, and deal with this fear from the root, not from a bottle.
> Dear Boatsie~
> I'm so sorry that you're having such a rough time. I did manage to get off of this med., as I posted before..but it's really hard. I am also dealing with the fear that has come back in regard to my diagnosis of Melanoma in July of 2002, and the fear of recurrence or metastisis,which haunts me. It's very tempting to go back on Effexor, to lessen the fear, but I just can't do it..not after what I went through with the withdrawl.
> So, you're not alone in your fight..It's a daily battle.
> Hugs, Faith~
Posted by Jiggitykid on September 1, 2004, at 15:46:43
In reply to Re: Effexor withdrawal symptoms! » FaithT, posted by Jiggitykid on September 1, 2004, at 15:44:32
FaithT - One more thing: when you search for a counselor on the aapc website, search under your state. You will get a much longer list than under your area code or zip code (unless you live in a very large city). Take care!!!
Posted by FaithT on September 1, 2004, at 18:21:07
In reply to Re: Effexor withdrawal symptoms! » FaithT, posted by Jiggitykid on September 1, 2004, at 15:44:32
Dear Jiggity~
You know...what you said is so true. Faith is my middle name...yet I have very little. It's ironic, isn't it?
I have never thought of seeking out a Christian Counsellor, but that's a REALLY great idea. I never even knew they existed, but I'm going to check into the sight you recommended. THANK YOU!!
Hugs, Faith~
Posted by Erica22 on September 2, 2004, at 6:15:45
In reply to Effexor withdrawal symptoms!, posted by Becky on October 2, 1999, at 22:03:30
It is 3:30 AM and I just woke up from a horrible nightmare. It is day 7 of being off of Effexor. The nightmare left me so shook that I am still feeling paranoid. Thanks to you guys I knew that getting nightmares from Effexor withdrawing is typical. I feel like those zaps are my brain misfiring *shrugs* I really pray that not getting sleep because of nightmares doesn't become the norm. Since getting off of Effexor, by 7 PM every night I can't take the dizziness anymore and I fall into a deep sleep and wake up at 9 PM so I won't be as tired with that extra sleep. Anyways before these nightmares and after getting off Effexor I was having long sleeps over night where I felt like a long complex dream where I remembered the plot of it vividly. I would wake up right away as soon as the dream ended, like tonight but this time it was plain horror! My dream went like this- I had got drawn into hanging out with a new love interest and his family and they always stuck together at his house. Turns out they lure people in and make them part of their gang. Any attempt at leaving will result in your murder. Well I got the cops attention focused on us all stuck in the situation which lead to the gang being busted but not all of them went to jail and since I was the newest member they suspected me and I had it coming, a whole new life if I was lucky to escape death first. How crazy! I woke up paranoid of who could be lurking around and contemplating my vunerability if the situation were true. I never was like this before and I want it to end! I know its a dream so I haven't done anything to exhibit paranoia but man if these horror dreams keep happening like others have said it does- no fun as if we haven't been through enough bad unproductive days that made us get on the Effexor to begin with. The withdrawal symptoms of Effexor can be quite interruptive to one's life.
Posted by FaithT on September 2, 2004, at 6:36:47
In reply to Effexor withdrawal nightmares,sleep, posted by Erica22 on September 2, 2004, at 6:15:45
Dear Erica~
I had the same nightmar-ish experiences that you're describing, while getting off Effexor... Try and not fall into the same pattern that I did, because mine did lead to insomnia that lasted about 6 weeks. You might want to try a Melatonin Supplement before bed..they seem to have helped me. You will get throught this part,and it does get better..
Hugs, Faith~
Posted by Jiggitykid on September 2, 2004, at 6:46:00
In reply to Effexor withdrawal nightmares,sleep, posted by Erica22 on September 2, 2004, at 6:15:45
First of all, flesh the dream out, write a book and make a million dollars!! ;-) I had the same type of horror-dreams. I was scared to go to sleep, too. I usually held on to dear hubby's arm (when he'd let me - he is one of those, "Don't touch me, it's hot," sleepers, but he was more patient with me during this) which helped keep me grounded. Another thing I did was keep a lamp on, so that when I woke up, I could become immediately accustomed to my surroundings. And, I also did what I joked about and what you just did: I wrote the dream out or told someone the entire detailed thing, so that the dream was "out of my head." That helped put it into perspective.
This is part and parcel of the withdrawal, I'm sorry to say. Knowing that these dreams would not stay forever helped me get through that time. Be very careful about taking sleep aids, etc., that might become habit forming; you don't want to make a bad situation worse.
Take care, and write that next horror blockbuster! :-)
> It is 3:30 AM and I just woke up from a horrible nightmare. It is day 7 of being off of Effexor. The nightmare left me so shook that I am still feeling paranoid. Thanks to you guys I knew that getting nightmares from Effexor withdrawing is typical. I feel like those zaps are my brain misfiring *shrugs* I really pray that not getting sleep because of nightmares doesn't become the norm. Since getting off of Effexor, by 7 PM every night I can't take the dizziness anymore and I fall into a deep sleep and wake up at 9 PM so I won't be as tired with that extra sleep. Anyways before these nightmares and after getting off Effexor I was having long sleeps over night where I felt like a long complex dream where I remembered the plot of it vividly. I would wake up right away as soon as the dream ended, like tonight but this time it was plain horror! My dream went like this- I had got drawn into hanging out with a new love interest and his family and they always stuck together at his house. Turns out they lure people in and make them part of their gang. Any attempt at leaving will result in your murder. Well I got the cops attention focused on us all stuck in the situation which lead to the gang being busted but not all of them went to jail and since I was the newest member they suspected me and I had it coming, a whole new life if I was lucky to escape death first. How crazy! I woke up paranoid of who could be lurking around and contemplating my vunerability if the situation were true. I never was like this before and I want it to end! I know its a dream so I haven't done anything to exhibit paranoia but man if these horror dreams keep happening like others have said it does- no fun as if we haven't been through enough bad unproductive days that made us get on the Effexor to begin with. The withdrawal symptoms of Effexor can be quite interruptive to one's life.
Posted by Jiggitykid on September 3, 2004, at 7:46:57
In reply to Re: Effexor withdrawal symptoms! » Jiggitykid, posted by FaithT on September 1, 2004, at 18:21:07
Bless your heart, Faith! What a sweet post. I am praying for you and for peace in your heart. It is a struggle, dealing with fear of the unknown. That is something I have in my own life. My husband is one of those, "Why worry?" kind of people. I admire that. Counseling helped me so much; I hope that it will help you, too. If you don't feel comfortable with the counselor you find, then move on to the next. If the counselor doesn't "get" you or is talking more than listening, then by all means, it is your right and imperative to find one that works for you.
Take care!!
> Dear Jiggity~
> You know...what you said is so true. Faith is my middle name...yet I have very little. It's ironic, isn't it?
> I have never thought of seeking out a Christian Counsellor, but that's a REALLY great idea. I never even knew they existed, but I'm going to check into the sight you recommended. THANK YOU!!
> Hugs, Faith~
Posted by Americk on September 11, 2004, at 21:07:04
In reply to Re: Effexor withdrawal symptoms! » FaithT, posted by Jiggitykid on September 3, 2004, at 7:46:57
Hi everyone,
I have basically cut Effexor cold turkey from 75mg. I took 35mg 1 day off and on, but I found I was getting nowhere.
My symptoms include the brain shakes or cloudiness that everyone is talking about (vertigo), which is hell. I have major nausea; diarrhea and I find myself extremely tired. I can't concentrate, I’m moody and paranoid.
This is my 3rd day completely off Effexor and I know after reading your messages that I can do this too.
I am scared that there are yet more symptoms to arrive such as bad dreams, the itching etc... I can barley cope with the symptoms I’m having as it is.
Everyone stay strong, confide in friends and family and take your vitamins.
I hope for a better life after this Effexor nightmare.
Thank you all.
Posted by Erica22 on September 12, 2004, at 13:12:24
In reply to Re: Effexor withdrawal symptoms!, posted by Americk on September 11, 2004, at 21:07:04
I want to let you all know that my worst of all syptoms passed after day 9 of being off Effexor entirely. Cool huh? I was expecting it to be longer. I feel more like myself, more in tune with me and not like a zombie. But it has only been 2 weeks so I will have to see as time goes on if I get the brain fog back. That was the reason why I got on Effexor in the firt place. But yeah during that time of withdrawal effects the nausea and vertigo and vivid dreams were horrible.. The way I went off Effexor was I had been taking 75 mg, then I went to 37.5 mg for a week, then nothing.
Posted by AIK on September 17, 2004, at 6:58:46
In reply to Effexor withdrawal symptoms!, posted by Becky on October 2, 1999, at 22:03:30
I was put on Effexor 37.5 two times a day about a year and half ago to help with my fibromyalgia since pain medication upset my stomach (reflux, etc). I also have arthritis esp. in my fingers, and degenerative disk disease in my neck and back. Unfortunately, Tylenol just didn't cut it, so as I continued to plea for pain medication and finally got my Dr.'s associate to write a script for Ultram, but said I need to taper off the Effexor (chance of seizures taking both meds). He told me to take the Effexor only once a day for 3 days, then stop the Effexor and start the Ultram. Working in a pharmacy, I repeated back to the Dr. numerous times over the phone if this is what he said. It just didn't sound right to me for weening someone off this type of medication. I asked the Dr. if I shouldn't take one every other day, but he said one a day for 3 days. So, I did what he told me to do. I threw up the first dose of Ultram on day 4, continued vomiting multiple times during the following days, had dreams inside of dreams inside of dreams (thought I was awake, but was in another dream...spooky!), couldn't stay awake, couldn't hold my head up without feeling like falling over. I thought I had contacted a "bug" that was going around, or perhaps the one and only dose of Ultram I took was the culprit. I didn't contact the Dr. that prescribed the above because he wasn't the one I normally see (who was out of town for the week) so I consulted my pharmacist. "You've got to be kidding. You can't ween yourself off an SNRI (seretonin norephinepherine reuptake inhibitor) or SSRI's in 3 days without suffering withdrawal.
It takes a minimum of several weeks." She suggested to take an Effexor to get my head and stomach back on track, and continue with one a day for 1 week, then 1/2 tablet a day for 1 week, then 1/4 tablet a day for 1 week. I'm only on my 3rd day of one tablet a day. After I took one Effexor 3 days ago, within a half hour my sickness went away. I have an appt. with my Dr. in October. I want to find out what his associate wrote on my chart concerning tapering down the Effexor. If any of you out there aren't comfortable with what your Dr. tells you, consult another Dr. or ask your pharmacist.
Posted by Jiggitykid on September 17, 2004, at 11:48:22
In reply to Re: Effexor withdrawal symptoms!, posted by AIK on September 17, 2004, at 6:58:46
I'm sorry for what you are going through (I've got FM and IA, too, so I truly, "feel your pain,") but I have to admit that it will be a blessing to others to have a pharmacist, someone on the front lines, who KNOWS what this is like. It is dreadfully disturbing to know that doctors don't know how to deal with this. I hate to tell you this, but you are going to deal with some kind of withdrawal no matter how you taper. This drug is evil, and will "get you," no matter how you wean. Hang in there, check back here, know that your symptoms are, "normal," and that you can get through it. Most of all, be an advocate for the people who will be dealing with this. My pharmacist had no clue. I filled him in, but he basically patted my hand and told me that sometimes "this happens."
> I was put on Effexor 37.5 two times a day about a year and half ago to help with my fibromyalgia since pain medication upset my stomach (reflux, etc). I also have arthritis esp. in my fingers, and degenerative disk disease in my neck and back. Unfortunately, Tylenol just didn't cut it, so as I continued to plea for pain medication and finally got my Dr.'s associate to write a script for Ultram, but said I need to taper off the Effexor (chance of seizures taking both meds). He told me to take the Effexor only once a day for 3 days, then stop the Effexor and start the Ultram. Working in a pharmacy, I repeated back to the Dr. numerous times over the phone if this is what he said. It just didn't sound right to me for weening someone off this type of medication. I asked the Dr. if I shouldn't take one every other day, but he said one a day for 3 days. So, I did what he told me to do. I threw up the first dose of Ultram on day 4, continued vomiting multiple times during the following days, had dreams inside of dreams inside of dreams (thought I was awake, but was in another dream...spooky!), couldn't stay awake, couldn't hold my head up without feeling like falling over. I thought I had contacted a "bug" that was going around, or perhaps the one and only dose of Ultram I took was the culprit. I didn't contact the Dr. that prescribed the above because he wasn't the one I normally see (who was out of town for the week) so I consulted my pharmacist. "You've got to be kidding. You can't ween yourself off an SNRI (seretonin norephinepherine reuptake inhibitor) or SSRI's in 3 days without suffering withdrawal.
> It takes a minimum of several weeks." She suggested to take an Effexor to get my head and stomach back on track, and continue with one a day for 1 week, then 1/2 tablet a day for 1 week, then 1/4 tablet a day for 1 week. I'm only on my 3rd day of one tablet a day. After I took one Effexor 3 days ago, within a half hour my sickness went away. I have an appt. with my Dr. in October. I want to find out what his associate wrote on my chart concerning tapering down the Effexor. If any of you out there aren't comfortable with what your Dr. tells you, consult another Dr. or ask your pharmacist.
Posted by Bubblehead on September 18, 2004, at 21:41:24
In reply to Re: Effexor withdrawal symptoms!, posted by AIK on September 17, 2004, at 6:58:46
AIK,
I'm am so happy to see your post today. I am having that weird freaky dream inside of dream inside of dream thing also. I tapered down as my doctor had advised. Two days ago was the day to completely stop taking the Effexor. Boy was I in for a rude awakening. I was pretty optimistic until then. This withdrawl is horrid.I've got a question for anyone who has had these brain zaps that you speak of. Can someone explain them to me? I've got some really creepy things going on in my noggin' and don't know if they are normal withdrawl things or not. Any help please!!!!!
Posted by Jiggitykid on September 18, 2004, at 22:52:46
In reply to Re: Effexor withdrawal symptoms!, posted by Bubblehead on September 18, 2004, at 21:41:24
Well, it depends on what those freaky things are :-). I wondered about my sanity, too, for a while, but after a couple of weeks they settled down more. I quit cold turkey from 250 mg. BAM! It was awful, actually, awful doesn't nearly describe the hell. All I can tell you is to hang in there, sleep with the light on if it helps, and take care of yourself.
> AIK,
> I'm am so happy to see your post today. I am having that weird freaky dream inside of dream inside of dream thing also. I tapered down as my doctor had advised. Two days ago was the day to completely stop taking the Effexor. Boy was I in for a rude awakening. I was pretty optimistic until then. This withdrawl is horrid.
>
> I've got a question for anyone who has had these brain zaps that you speak of. Can someone explain them to me? I've got some really creepy things going on in my noggin' and don't know if they are normal withdrawl things or not. Any help please!!!!!
Posted by Bubblehead on September 20, 2004, at 15:33:45
In reply to Re: Effexor withdrawal symptoms! » Bubblehead, posted by Jiggitykid on September 18, 2004, at 22:52:46
Thank you for saying what you did. Honestly, if I did not find this board while going through this Terrible withdrawl; I would be in the mental hospital. I really feel like I'm going crazy. I didn't quit cold turkey but I was on a high dose of 450mg. The weird "whoossh" sound (as others have called it) is really getting me. And then you add the body surges, the dizziness, the bad dreams, the shakeing, the increased depressive thoughts....anyway, you know what I mean, the list could go on and on. Yesterday, was my worst. I wanted to just end it to excape the maddening mental pain not to mention the physical aching; but I held on and made it through. I almost even took some of the Effexor in hopes of finding relief. My husbands laughs today about it, but I was actually bribing him to try and get some of the meds. I can't wait until this is all over. It makes me so upset at how mis-informed we were. Again, thank you for replying. It is great to have this board for help.
Posted by Jiggitykid on September 20, 2004, at 16:55:30
In reply to Re: Effexor withdrawal symptoms! » Jiggitykid, posted by Bubblehead on September 20, 2004, at 15:33:45
Bless your heart! Congrats on NOT going back to the Effexor - that would have been putting off the inevitable. You are lucky to have a husband there who sees what is going on and is helping you stay strong. Please continue to keep in mind that this is only temporary - "this, too, shall pass," and that you WILL get better. Ending things is a permanent fix for a temporary problem. You aren't crazy. This situation is, though, of doctors not being informed about this drug, or simply not choosing to be informed, whichever may be the case. Write your dreams down, if that helps keep a clear dividing line between reality and dreams. The whoosing noise and the zaps will stop; they are horrible, I know. Be careful driving.
Hang in there, and when someone comes along with this same situation, tell them what you know. Tell your pharmacist and your doctor what you are going through. They may or may not choose to believe you or may choose to think you are one of only a small number, but at least you'll know you did your part. Take care!!
> Thank you for saying what you did. Honestly, if I did not find this board while going through this Terrible withdrawl; I would be in the mental hospital. I really feel like I'm going crazy. I didn't quit cold turkey but I was on a high dose of 450mg. The weird "whoossh" sound (as others have called it) is really getting me. And then you add the body surges, the dizziness, the bad dreams, the shakeing, the increased depressive thoughts....anyway, you know what I mean, the list could go on and on. Yesterday, was my worst. I wanted to just end it to excape the maddening mental pain not to mention the physical aching; but I held on and made it through. I almost even took some of the Effexor in hopes of finding relief. My husbands laughs today about it, but I was actually bribing him to try and get some of the meds. I can't wait until this is all over. It makes me so upset at how mis-informed we were. Again, thank you for replying. It is great to have this board for help.
Posted by jujube on September 20, 2004, at 19:56:25
In reply to Re: Effexor withdrawal symptoms! » Bubblehead, posted by Jiggitykid on September 20, 2004, at 16:55:30
I, too, am so thankful to have found this board. I am relatively new to this, but have found it extremely catharic. I was on Effexor XR for 6 months (prior to and during this period, I was also significantly iron deficient, which probably contributed greatly to my anxious and apathetic mood). After 6 months on Effexor XR (on doses as high as 225 mg), I just experienced increased lethargy, apathy and apprehension (In over 8 1/2 years, I had only had one episode, which as 8 months ago, that could have been considered an anxiety attack, yet I couldn't shake the "what if" mind set even on a 225 mg of Effexor). My doctor reduced my dose of Effexor XR from 150 mg to 0 over two weeks and started me on Celexa (I wanted to try something natural like Sam-e or Rosavin because I don't want to go through another Effexor-like experience). I have now been 1.5 weeks Effexor free and 1.5 weeks on Celexa. I am not sure if I am simply adjusting to the Celexa or still experiencing residual Effexor withdrawal, but I am sooooo tired, apathetic and nauseated. However, I had been severely nauseated for weeks before stopping the Effexor because of being given Depo Provera (my periods had become irregular and I was having night sweats (possibly caused by the Effexor) and with iron deficiency, bleeding every two weeks was not helping). The Depo Provera has certainly not helped my situation. Nevertheless, I remain confident that, yes, THIS TOO SHALL PASS.
I have to say that the board and people sharing their experiences not only helped me gain a better understanding, I was also able to help my aunt. You see, my uncle, who has been diagnosed with early stages dementia, had been put on Effexor XR last December. Like me, he was becoming increasingly apathetic (not interested in anything), tired and anxious on the Effexor. Anyways, he was taken off Effexor recently, and my aunt thought he had come down with some really, bad bug (he was sick, couldn't walk straight, crying all the time, tired). I told her what I had found, and she was able to relieve some of the anxiety my uncle was experiencing.
So, I just wanted to say thanks to all of you who have taken the time to share, support and empathize. This is a wonderful forum.
Sorry for the long message.
Tamara
> Bless your heart! Congrats on NOT going back to the Effexor - that would have been putting off the inevitable. You are lucky to have a husband there who sees what is going on and is helping you stay strong. Please continue to keep in mind that this is only temporary - "this, too, shall pass," and that you WILL get better. Ending things is a permanent fix for a temporary problem. You aren't crazy. This situation is, though, of doctors not being informed about this drug, or simply not choosing to be informed, whichever may be the case. Write your dreams down, if that helps keep a clear dividing line between reality and dreams. The whoosing noise and the zaps will stop; they are horrible, I know. Be careful driving.
>
> Hang in there, and when someone comes along with this same situation, tell them what you know. Tell your pharmacist and your doctor what you are going through. They may or may not choose to believe you or may choose to think you are one of only a small number, but at least you'll know you did your part. Take care!!
>
> > Thank you for saying what you did. Honestly, if I did not find this board while going through this Terrible withdrawl; I would be in the mental hospital. I really feel like I'm going crazy. I didn't quit cold turkey but I was on a high dose of 450mg. The weird "whoossh" sound (as others have called it) is really getting me. And then you add the body surges, the dizziness, the bad dreams, the shakeing, the increased depressive thoughts....anyway, you know what I mean, the list could go on and on. Yesterday, was my worst. I wanted to just end it to excape the maddening mental pain not to mention the physical aching; but I held on and made it through. I almost even took some of the Effexor in hopes of finding relief. My husbands laughs today about it, but I was actually bribing him to try and get some of the meds. I can't wait until this is all over. It makes me so upset at how mis-informed we were. Again, thank you for replying. It is great to have this board for help.
>
>
Posted by AIK on September 20, 2004, at 20:15:23
In reply to Re: Effexor withdrawal symptoms! » AIK, posted by Jiggitykid on September 17, 2004, at 11:48:22
I'm unfamiliar with the term "brain zaps". Please tell me what this feeling refers to. Oh, by the way, I had to increase my dose to 1 tab in the am and 1/2 tab in the pm (instead of 1/2 in the am & 1/2 in the pm). I got the symtoms back and couldn't afford to "not be able to function". As the days go by, I keep getting more angry at the doctor who prescribed this stuff for pain. Stupid me, didn't realize it didn't relieve any pain I was having. What it did do, however, has put me in a state of "whatever". I looked upon my husband and others as they could act out their feelings, and I on the other hand, just looked at them as if they were out of control or crazy. La, la, la, as life passed by. I am also on Diazepam (lowest dose Valium), which I do not abuse under any circumstance. I never thought to take any drug other than what was prescirbed for me...and here I am, taking a prescribed drug that apparently I can't get off without sick, ugly withdrawal symtoms. Now to get you all really mad, do you know the drug company reps tell the doctors if you write so many scripts for this or for that, we'll give you something back. For instance, how about a trip for your office staff to go to Atlantic City, or a new computer, and the list goes on. Every month the reps are pushing a new drug for the doctors to write scripts for. Probably the same drug company that has an antidote for the withdrawal symptoms. It's all about money. Think about it; if we have to go to a psychologist or psychiatrist to get off this stuff, or go back in to see the doctor, our money is going to the medical profession. Around and around we go; and who suffers? They gain, we lose. When I do taper down to 1/2 tab every other day (hopefully) you can be assured that I will not start any medication that a doctor prescribes for me before knowing it's side effects if stopped. I feel that I have been undermined and played a fool...or the MD doesn't know a "hill of beans" about this medication.
> I'm sorry for what you are going through (I've got FM and IA, too, so I truly, "feel your pain,") but I have to admit that it will be a blessing to others to have a pharmacist, someone on the front lines, who KNOWS what this is like. It is dreadfully disturbing to know that doctors don't know how to deal with this. I hate to tell you this, but you are going to deal with some kind of withdrawal no matter how you taper. This drug is evil, and will "get you," no matter how you wean. Hang in there, check back here, know that your symptoms are, "normal," and that you can get through it. Most of all, be an advocate for the people who will be dealing with this. My pharmacist had no clue. I filled him in, but he basically patted my hand and told me that sometimes "this happens."
>
> > I was put on Effexor 37.5 two times a day about a year and half ago to help with my fibromyalgia since pain medication upset my stomach (reflux, etc). I also have arthritis esp. in my fingers, and degenerative disk disease in my neck and back. Unfortunately, Tylenol just didn't cut it, so as I continued to plea for pain medication and finally got my Dr.'s associate to write a script for Ultram, but said I need to taper off the Effexor (chance of seizures taking both meds). He told me to take the Effexor only once a day for 3 days, then stop the Effexor and start the Ultram. Working in a pharmacy, I repeated back to the Dr. numerous times over the phone if this is what he said. It just didn't sound right to me for weening someone off this type of medication. I asked the Dr. if I shouldn't take one every other day, but he said one a day for 3 days. So, I did what he told me to do. I threw up the first dose of Ultram on day 4, continued vomiting multiple times during the following days, had dreams inside of dreams inside of dreams (thought I was awake, but was in another dream...spooky!), couldn't stay awake, couldn't hold my head up without feeling like falling over. I thought I had contacted a "bug" that was going around, or perhaps the one and only dose of Ultram I took was the culprit. I didn't contact the Dr. that prescribed the above because he wasn't the one I normally see (who was out of town for the week) so I consulted my pharmacist. "You've got to be kidding. You can't ween yourself off an SNRI (seretonin norephinepherine reuptake inhibitor) or SSRI's in 3 days without suffering withdrawal.
> > It takes a minimum of several weeks." She suggested to take an Effexor to get my head and stomach back on track, and continue with one a day for 1 week, then 1/2 tablet a day for 1 week, then 1/4 tablet a day for 1 week. I'm only on my 3rd day of one tablet a day. After I took one Effexor 3 days ago, within a half hour my sickness went away. I have an appt. with my Dr. in October. I want to find out what his associate wrote on my chart concerning tapering down the Effexor. If any of you out there aren't comfortable with what your Dr. tells you, consult another Dr. or ask your pharmacist.
>
>
Posted by Jiggitykid on September 20, 2004, at 22:16:15
In reply to Re: Effexor withdrawal symptoms!, posted by AIK on September 20, 2004, at 20:15:23
"Brain Zaps" feel like electric shocks that start in the brain and feel like you've been suddenly shocked. Mine went from the top of my head all the way to my feet. It was periodic, and quite frequent, for the first several days, and began to lessen as the second week ended. It truly felt like electric shocks in my brain and in my body.
I don't blame you for doing what you have to do, but the time will come when you'll have to quit. I know how hard it can be to take prescription drugs for real conditions and have to be constantly vigilant to monitor and watch. What I've discovered in my personal experience (have to throw that in - I'm not a medical pro) that most people with REAL pain disorders are very, very careful and don't get that high from painkillers and other medications because the medication does what it is supposed to do.
I did find that the pain medication helped in the withdrawal. It helped me cope with the body pain that the effexor brought on. Also, ibuprofen helped. Bonine helped a little with the dizzies. I had to wear my glasses constantly because of the vision disturbances.
I'm facing a procedure tomorrow that is potentially painful. I'm frightened, but I know that I've got to do it, that others have done it and that I'll come out on the other side okay. That's the only way to face getting off of the effexor. The "reward" you'll get is that you'll get YOU back. I truly felt like the real me had died and disappeared forever when I was taking the effexor. I'm back, and finally moving forward. My marriage was nearly wrecked because of what the effexor did. Now that I'm off of that drug from hell, we just celebrated our 15th anniversary. Life isn't perfect, but it's a heck of a lot better than when I was on the zombie drug.
The main thing is to know that you are NOT crazy, you are NOT alone, your anger and frustration ARE valid and that you must have someone around you who understands what you are going through (refer them to this board and by all means all of you sign the petition). Be an advocate for your customers. Please, take care of yourself and let me, and us, know of your progress. You are in my prayers. I am living proof that there is light at the end of the tunnel, and if I can get through it, you can too.
> I'm unfamiliar with the term "brain zaps". Please tell me what this feeling refers to. Oh, by the way, I had to increase my dose to 1 tab in the am and 1/2 tab in the pm (instead of 1/2 in the am & 1/2 in the pm). I got the symtoms back and couldn't afford to "not be able to function". As the days go by, I keep getting more angry at the doctor who prescribed this stuff for pain. Stupid me, didn't realize it didn't relieve any pain I was having. What it did do, however, has put me in a state of "whatever". I looked upon my husband and others as they could act out their feelings, and I on the other hand, just looked at them as if they were out of control or crazy. La, la, la, as life passed by. I am also on Diazepam (lowest dose Valium), which I do not abuse under any circumstance. I never thought to take any drug other than what was prescirbed for me...and here I am, taking a prescribed drug that apparently I can't get off without sick, ugly withdrawal symtoms. Now to get you all really mad, do you know the drug company reps tell the doctors if you write so many scripts for this or for that, we'll give you something back. For instance, how about a trip for your office staff to go to Atlantic City, or a new computer, and the list goes on. Every month the reps are pushing a new drug for the doctors to write scripts for. Probably the same drug company that has an antidote for the withdrawal symptoms. It's all about money. Think about it; if we have to go to a psychologist or psychiatrist to get off this stuff, or go back in to see the doctor, our money is going to the medical profession. Around and around we go; and who suffers? They gain, we lose. When I do taper down to 1/2 tab every other day (hopefully) you can be assured that I will not start any medication that a doctor prescribes for me before knowing it's side effects if stopped. I feel that I have been undermined and played a fool...or the MD doesn't know a "hill of beans" about this medication.
>
> > I'm sorry for what you are going through (I've got FM and IA, too, so I truly, "feel your pain,") but I have to admit that it will be a blessing to others to have a pharmacist, someone on the front lines, who KNOWS what this is like. It is dreadfully disturbing to know that doctors don't know how to deal with this. I hate to tell you this, but you are going to deal with some kind of withdrawal no matter how you taper. This drug is evil, and will "get you," no matter how you wean. Hang in there, check back here, know that your symptoms are, "normal," and that you can get through it. Most of all, be an advocate for the people who will be dealing with this. My pharmacist had no clue. I filled him in, but he basically patted my hand and told me that sometimes "this happens."
> >
> > > I was put on Effexor 37.5 two times a day about a year and half ago to help with my fibromyalgia since pain medication upset my stomach (reflux, etc). I also have arthritis esp. in my fingers, and degenerative disk disease in my neck and back. Unfortunately, Tylenol just didn't cut it, so as I continued to plea for pain medication and finally got my Dr.'s associate to write a script for Ultram, but said I need to taper off the Effexor (chance of seizures taking both meds). He told me to take the Effexor only once a day for 3 days, then stop the Effexor and start the Ultram. Working in a pharmacy, I repeated back to the Dr. numerous times over the phone if this is what he said. It just didn't sound right to me for weening someone off this type of medication. I asked the Dr. if I shouldn't take one every other day, but he said one a day for 3 days. So, I did what he told me to do. I threw up the first dose of Ultram on day 4, continued vomiting multiple times during the following days, had dreams inside of dreams inside of dreams (thought I was awake, but was in another dream...spooky!), couldn't stay awake, couldn't hold my head up without feeling like falling over. I thought I had contacted a "bug" that was going around, or perhaps the one and only dose of Ultram I took was the culprit. I didn't contact the Dr. that prescribed the above because he wasn't the one I normally see (who was out of town for the week) so I consulted my pharmacist. "You've got to be kidding. You can't ween yourself off an SNRI (seretonin norephinepherine reuptake inhibitor) or SSRI's in 3 days without suffering withdrawal.
> > > It takes a minimum of several weeks." She suggested to take an Effexor to get my head and stomach back on track, and continue with one a day for 1 week, then 1/2 tablet a day for 1 week, then 1/4 tablet a day for 1 week. I'm only on my 3rd day of one tablet a day. After I took one Effexor 3 days ago, within a half hour my sickness went away. I have an appt. with my Dr. in October. I want to find out what his associate wrote on my chart concerning tapering down the Effexor. If any of you out there aren't comfortable with what your Dr. tells you, consult another Dr. or ask your pharmacist.
> >
> >
>
>
Posted by Jiggitykid on September 20, 2004, at 22:27:15
In reply to Re: Effexor withdrawal symptoms! » Jiggitykid, posted by jujube on September 20, 2004, at 19:56:25
First of all, God bless you for being an instrument of calm and healing for your uncle and aunt.
Now, I have to ask this of everyone: What is it going to take for our country and the FDA to HEAR us and do something? I've contacted several television stations and newspapers and have gotten nowhere. SOMEONE has to know of a reporter who cares, maybe has been through this, who would be willing to make some noise. SOMEONE has to know of a lawyer who would be willing to file a class-action suit against the maker. SOMEONE has to know someone in the FDA who can help. There are too many people suffering because of this DRUG FROM HELL and no one outside of the people here know about it. What can we do??
Okay, enough of my tirade. Anyway, I'm glad you found the site and found that you are normal in what you have experienced. My heart breaks for your aunt and uncle. What a tragedy that a couple in such a sad situation to begin with has to be used as guinea pigs.
I was extremely nauseated for a couple of weeks during the effexor withdrawal. It took four weeks for me to feel "normal." The first two weeks were harder than the second.
Please take care of yourself and tell your aunt that they are in my prayers. Please sign the petition, and get everyone you know to sign it as well. Thanks for your post.
> I, too, am so thankful to have found this board. I am relatively new to this, but have found it extremely catharic. I was on Effexor XR for 6 months (prior to and during this period, I was also significantly iron deficient, which probably contributed greatly to my anxious and apathetic mood). After 6 months on Effexor XR (on doses as high as 225 mg), I just experienced increased lethargy, apathy and apprehension (In over 8 1/2 years, I had only had one episode, which as 8 months ago, that could have been considered an anxiety attack, yet I couldn't shake the "what if" mind set even on a 225 mg of Effexor). My doctor reduced my dose of Effexor XR from 150 mg to 0 over two weeks and started me on Celexa (I wanted to try something natural like Sam-e or Rosavin because I don't want to go through another Effexor-like experience). I have now been 1.5 weeks Effexor free and 1.5 weeks on Celexa. I am not sure if I am simply adjusting to the Celexa or still experiencing residual Effexor withdrawal, but I am sooooo tired, apathetic and nauseated. However, I had been severely nauseated for weeks before stopping the Effexor because of being given Depo Provera (my periods had become irregular and I was having night sweats (possibly caused by the Effexor) and with iron deficiency, bleeding every two weeks was not helping). The Depo Provera has certainly not helped my situation. Nevertheless, I remain confident that, yes, THIS TOO SHALL PASS.
>
Posted by Jiggitykid on September 20, 2004, at 22:28:40
In reply to Re: Effexor withdrawal symptoms! » Jiggitykid, posted by jujube on September 20, 2004, at 19:56:25
I just found this post and thought I'd point everyone to it. PLEASE, do this:
Go forward in thread:
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